Alagille Syndrome Alliance Employee Directory
Non-profit OrganizationsDistrict of Columbia, United States2-10 Employees
The Alagille Syndrome Alliance is a small nonprofit based in Washington, D.C., operating as a 501(c)(3) public charity. It maintains a Medical Advisory Board and publishes a quarterly newsletter, in addition to a website that reaches families worldwide. The organization acts as a central resource for people with Alagille Syndrome and for their families and friends, offering mutual support, information, and access to resources, and it promotes participation in research. It provides up-to-date, accurate information on ALGS and its treatments and supports research by encouraging members to engage in studies. Based in Washington, District of Columbia, the alliance operates as a small nonprofit dedicated to connecting affected individuals with information and services and nurturing a community around ALGS.