Alpha-1 Foundation

Research ServicesFlorida, United States51-200 Employees

The Alpha-1 Foundation is a nonprofit organization focused on advancing research and improving the lives of individuals affected by Alpha-1 Antitrypsin Deficiency. Based in Coral Gables, Florida, the foundation supports scientific work and patient programs at institutions across North America, Europe, the Middle East, and Australia, aiming to accelerate the discovery of a cure and enhance patient outcomes. Its activities encompass funding and coordinating research efforts, with a governance structure that includes many board members personally affected by Alpha-1 or with close connections to someone who is.

Since its founding in 1995, the organization has directed substantial resources toward Alpha-1-related initiatives and collaborations, and it has overseen the development of programs powered by affiliated projects such as the Alpha-1 Project. A recent development noted in public announcements is the collaboration with Sanofi through the Alpha-1 Project, signaling ongoing efforts to advance treatment avenues and industry partnerships in the field.

Sign up for free to view info

Email Format Employee directory