ALS Society of Canada

Non-profit OrganizationsOntario, Canada51-200 Employees

The ALS Society of Canada is a national nonprofit registered charity based in Toronto, founded in 1977, that supports Canadians living with ALS and funds research to advance toward a treatment rather than a terminal diagnosis. It operates with provincial partners and, in Ontario, performs duties similar to those of provincial ALS societies, providing services to meet the needs of people living with ALS and advocating for stronger government support and access within the healthcare system. Through the ALS Canada Research Program, the organization funds peer-reviewed research grants, fosters collaboration, and helps build capacity within Canada’s ALS research community.

The organization runs programs that provide practical support after diagnosis, including one-on-one guidance by Community Leads and access to essential mobility, communication, and respiratory equipment through the Equipment Program. ALS Canada also pursues education and outreach initiatives, such as a Children and Youth Resource Hub launched in 2025 to help children, youth, and families understand ALS and its impact. In addition to services and research, the society advocates federally, provincially, and locally to improve government support and access to care for people affected by ALS.

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