Alternating Hemiplegia of Childhood Foundation (AHC Foundation) Email Format

Non-profit OrganizationsMichigan, United States2-10 Employees

The Alternating Hemiplegia of Childhood Foundation is a volunteer-driven nonprofit focused on advancing research, diagnosis, and care for Alternating Hemiplegia of Childhood (AHC). It grew from the merger of two longstanding patient organizations and is dedicated to funding research to identify causes, develop effective treatments, and ultimately find a cure, while also supporting families affected by the condition. The foundation promotes accurate diagnosis and education for clinicians and the public, encourages worldwide information exchange, and aims to build an international database of AHC patients. 

Based in Southfield, Michigan, it is run by parents of children with AHC and operates as a tax-exempt 501(c)(3) charity, maintaining low administrative costs through volunteer leadership. Its work is centered on families and healthcare professionals dealing with AHC, within the broader non-profit sector focused on rare neurological disorders.

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