American Syringomyelia & Chiari Alliance Project, Inc

Non-profit OrganizationsTexas, United States2-10 Employees

American Syringomyelia & Chiari Alliance Project, Inc. (ASAP) is a donor-supported nonprofit dedicated to syringomyelia and Chiari malformation. It seeks to increase awareness, promote research, and offer support to affected individuals and their families, as well as caregivers and healthcare professionals. The organization provides educational resources such as a Patient Handbook and hosts an annual conference that convenes researchers, clinicians, and people living with these conditions to exchange knowledge and experience. 

Based in Longview, Texas, ASAP operates as a nonprofit organization that links patients, families, and the medical community through its online resources and social media. In early 2025, Dr. J. Dlouhy departed from the organization, and the 2025 conference was hosted by Brian J. Dlouhy, MD.

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