Aplastic Anemia & MDS International Foundation Email Format

Health, Wellness and FitnessMaryland, United States11-50 Employees

The Aplastic Anemia & MDS International Foundation (AAMDSIF) is a nonprofit organization focused on supporting patients and families affected by bone marrow failure diseases, including aplastic anemia, myelodysplastic syndromes (MDS), and paroxysmal nocturnal hemoglobinuria. Based in Rockville, Maryland, the foundation provides information and resources to help individuals navigate the initial diagnosis, treatment, and long-term management of these chronic conditions, addressing both patient needs and caregiver concerns. In addition to direct patient support, AAMDSIF engages with medical professionals and researchers, administering the MDS Clinical Research Consortium to improve the outcomes of clinical trials and organizing a biennial International Scientific Symposium to foster knowledge exchange among bone marrow failure specialists. Founded in 1983 by families affected by the disease, the organization relies on contributions from individuals, foundations, and corporations and has earned recognition for its accountability from charity evaluators. AAMDSIF operates in the wellness and fitness services space by focusing on education, advocacy, and research collaboration to advance cures and support for the patient community.

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