Bobby Jones Chiari & Syringomyelia Foundation Email Format

Non-profit OrganizationsNew York, United States11-50 Employees

The Bobby Jones Chiari & Syringomyelia Foundation is a non-profit organization based in Staten Island, New York, focused on advancing knowledge about Chiari malformation, syringomyelia, and related disorders. Its work spans local, national, and international efforts to educate medical professionals, allied sciences, and lay communities while funding research aimed at improving the quality of life for families affected by CM, SM, and related conditions. The foundation serves patients, caregivers, researchers, and clinicians by delivering educational programs and supporting research projects that address these poorly understood conditions. With a small organizational footprint, it operates within the broader health nonprofit sector and maintains a presence online and through social media channels. A recent development noted is its participation in national conferences and collaboration events that disseminate research findings and engage stakeholders in discussions about these disorders.

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