CHARGE Syndrome Foundation, Inc. Email Format
Individual and Family ServicesIllinois, United States2-10 Employees
The CHARGE Syndrome Foundation, Inc. is a nonprofit charitable organization dedicated to CHARGE syndrome. It was established in 1993 by professionals who had worked with individuals with CHARGE syndrome and by parents of children affected by it. Based in Buffalo Grove, Illinois, the foundation operates within the individual and family services sector and maintains a small staff. The organization is governed by a twelve-member board, the majority of whom have a family member with CHARGE syndrome, with special advisors assisting in program development. Day-to-day management is carried out by the organization's officers.