Dandy-Walker Alliance Email Format
Non-profit OrganizationsMaryland, United States2-10 Employees
The Dandy-Walker Alliance is a nonprofit organization dedicated to supporting people affected by Dandy-Walker Syndrome and their families. It conducts outreach and offers individualized support to families in more than 80 countries, helping reduce isolation and provide practical guidance. It also educates families and medical professionals by supplying educational resources that clarify the diagnosis and inform a path forward. The alliance shares stories from around the world to illustrate the meaningful lives of those affected by Dandy-Walker. It supports research aimed at understanding genetic causes and improving treatments and outcomes, and it is based in Kensington, Maryland as a small nonprofit.