debra of America Employee Directory

Non-profit OrganizationsColorado, United States11-50 Employees

debra of America is a national nonprofit focused on Epidermolysis Bullosa (EB), with the aim of improving the lives of people affected by the condition. Headquartered in Boulder, Colorado, it serves patients, families, clinicians, and researchers as part of a broader EB advocacy and research ecosystem. The organization pursues partnerships and initiatives to advance EB knowledge and treatment, including efforts to establish patient registries that connect patients, clinicians, and researchers.
A recent development involves a collaboration with BPGbio to evaluate an investigational EB treatment in phase 2/3 trials. In the U.S. EB community, debra of America is described in coverage as the largest advocacy organization for patients with EB.

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