Emily Whitehead Foundation Employee Directory
Non-profit OrganizationsPennsylvania, United States11-50 Employees
The Emily Whitehead Foundation is a nonprofit that centers patient perspectives in the development and access of advanced therapies. It was founded by the parents of Emily Whitehead, the first child to receive life-saving CAR T-cell therapy, and aims to broaden availability and support for people affected by cancer and rare diseases. The organization maintains a global network of scientists, industry partners, and contributors to help translate Emily's survivor experience into broader impact. Based in Philipsburg, Pennsylvania, the foundation operates as a small nonprofit focused on advocacy, access, and support for patients and families. A recent development is a January 2026 partnership with BioLife Solutions, working with ScaleReady to advance manufacturing for cell and gene therapies.