Strategic partnerships EURORDIS-Rare Diseases Europe is a large non-profit alliance representing over 1,000 patient organisations across 70+ countries, presenting a broad collaboration network for potential partnerships, sponsorships, and joint initiatives with patient groups, researchers, and policy stakeholders.

Policy influence With a mission to shape research, policies and services for rare diseases, there are opportunities to offer policy advocacy services, grant-writing support, and consultancy to amplify patient voices and help EURORDIS engage with EU institutions, funders, and healthcare regulators.

Tech-enabled engagement Current tech stack (Drupal, MySQL, Microsoft 365, MailChimp, and web tools) indicates readiness for digital campaigns, data management, and community engagement; potential upsell in donor CRM optimization, data analytics, and targeted fundraising platforms.

Event and program solutions Active participation in conferences and collaborative initiatives (ERDERA, Rare Barometer surveys, Patient Partnership Framework) signals opportunities to offer event management, survey design, data collection, and stakeholder engagement services for large-scale patient research programs.

Funding and scale Revenue range indicates a mid-sized non-profit with growth potential; ideal for offering strategic fundraising support, grant consulting, partnerships with corporate donors, and services that help diversify funding streams and demonstrate impact to stakeholders.