EURORDIS-Rare Diseases Europe

Non-profit OrganizationsFrance51-200 Employees

EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of over 1,000 rare disease patient organisations from more than 70 countries that work together to improve the lives of all people living with rare diseases in Europe.

By connecting and mobilising all stakeholders from within and outside the rare disease community, EURORDIS strengthens the voice of people living with rare diseases and shapes research, policies and services. 

Our vision is a world where all people living with a rare disease can have longer and better lives and can achieve their full potential, in a society that values their well-being and leaves no-one behind.

To achieve their full potential, people living with a rare disease need to be:
- recognised as equal citizens with their rights fully respected
- diagnosed timely and accurately
- supported by state-of-the-art medical and social care, or cured
- included in society in all aspects of life and enabled to live independently

Our mission is to work across borders and diseases to improve the lives of all people living with rare diseases.

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