Family Heart Foundation Email Format

Philanthropic Fundraising ServicesFlorida, United States11-50 Employees

Family Heart Foundation is a patient-driven nonprofit focused on advocacy, research, and education around Familial Hypercholesterolemia and elevated Lipoprotein(a). Based in Fernandina Beach, Florida, the organization operates within the philanthropic fundraising sector and maintains a small team dedicated to increasing awareness and knowledge of inherited lipid disorders among patients and the health care community. Its activities center on informing and supporting those affected while advancing research in this area.

In September 2024, the foundation announced a collaboration with GENinCode to implement its LIPID inCode genetic test for diagnosing FH across primary and secondary care settings in the United States. This partnership signals an effort to bring genetic diagnostics into routine clinical care as part of the organization's broader mission to improve diagnosis and understanding of FH and Lp(a).

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