Fibrolamellar Cancer Foundation
Research ServicesConnecticut, United States11-50 Employees
The Fibrolamellar Cancer Foundation is a nonprofit research organization based in Greenwich, Connecticut, focused on fibrolamellar hepatocellular carcinoma, a rare liver cancer that predominantly affects teens and young adults. Its mission centers on raising awareness and funding research toward a cure and reliable treatments, while improving communication among healthcare professionals and patients. The foundation operates within the research services sector and collaborates with medical and scientific partners to advance understanding of fibrolamellar cancer. It has formed partnerships to support clinical research, including collaborations with the Cancer Research Institute to explore immunotherapy approaches. Notable partnerships include 2020 with Dracenpharma to make an experimental prodrug available for clinical research and 2025 with Dialectic Therapeutics to supply the experimental drug DT2216 for a clinical trial involving fibrolamellar patients; the organization is described as a small staff operation.