Hemophilia Federation of America Email Format

Public Policy OfficesDistrict of Columbia, United States11-50 Employees

Hemophilia Federation of America (HFA) is a nonprofit organization established in 1994 to address the evolving needs of the bleeding disorders community. It acts as a consumer advocate focused on safe, affordable, and obtainable blood products, health coverage, and an improved quality of life for people with bleeding disorders. Based in Washington, DC, the federation coordinates a national office alongside more than 30 community-based organizations, with involvement from families, healthcare providers, sponsors, donors, and specialty pharmacies.

HFA works to strengthen community support, develop local organizations, and run programs for adults and families affected by bleeding disorders. It represents the community on Capitol Hill and engages with agencies such as the FDA and CDC to inform policy and support advocacy at state and federal levels. A notable recent development is the launch of a clinical trial finder website in June 2023.

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