Insights

Strategic partnerships HSG actively engages in collaborations with leading institutions and industry players (e.g., Vanderbilt University Medical Center, HD Genetics, Neurocrine Biosciences) which signals openness to co-sponsorships, data sharing agreements, and joint study opportunities that can be leveraged for new trials or patient recruitment programs.

Global trial network With a world-class, 800+ expert network across 130+ credentialed sites, HSG offers scalable access to Huntington’s disease patient cohorts, enabling rapid site activation, multi-site studies, and broader geographic enrollment for sponsors seeking diverse populations.

Clinical operations leadership Recent leadership appointment of an Executive Director of Clinical Operations and a longstanding nonprofit structure highlight strong governance and operational maturity, which can reassure sponsors about project management, timelines, and compliance for complex HD trials.

Education and engagement HSG’s CME4HD program and ongoing educational initiatives create opportunities for sponsor-supported training, investigator engagement, and patient/clinician outreach that can be integrated into study logistics, site motivation, and patient retention strategies.

Funding and visibility Active press and industry collaboration history, including notable PR and trial partnerships, indicates solid market visibility and potential for co-funded studies, grant-supported research, or sponsorships that can broaden sponsor branding and patient recruitment channels.

Similar companies to Huntington Study Group

Huntington Study Group Tech Stack

Huntington Study Group uses 8 technology products and services including UserWay, Amazon Web Services, WordPress, and more. Explore Huntington Study Group's tech stack below.

Media & News

Huntington Study Group's Email Address Formats

Huntington Study Group uses at least 3 email formats:
Huntington Study Group Email FormatsExamplePercentage
First.Last@hsglimited.orgJohn.Doe@hsglimited.org
85%
First@hsglimited.orgJohn@hsglimited.org
15%
F.Last@huntingtonstudygroup.orgJ.Doe@huntingtonstudygroup.org
100%

Frequently Asked Questions

What is Huntington Study Group's phone number?

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You can contact Huntington Study Group's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Huntington Study Group's official website and social media links?

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Huntington Study Group's official website is huntingtonstudygroup.org and has social profiles on LinkedIn.

How much revenue does Huntington Study Group generate?

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As of August 2026, Huntington Study Group's annual revenue is estimated to be $1M - $10M.

What is Huntington Study Group's NAICS code?

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Huntington Study Group's NAICS code is 5417 - Scientific Research and Development Services.

How many employees does Huntington Study Group have currently?

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As of August 2026, Huntington Study Group has approximately 24 employees across 2 continents, including North America and Oceania. Key team members include Chief Operating Officer: A. A., Director Of Clinical Operations: J. G. and Director Of Finance: M. L. Explore Huntington Study Group's employee directory with LeadIQ.

What industry does Huntington Study Group belong to?

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Huntington Study Group operates in the Research Services industry.

What technology does Huntington Study Group use?

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Huntington Study Group's tech stack includes UserWay, Amazon Web Services, WordPress, CookieYes, Shopify, Microsoft 365, Google Cloud and Microsoft.

What is Huntington Study Group's email format?

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Huntington Study Group's email format typically follows the pattern of First.Last@hsglimited.org. Find more Huntington Study Group email formats with LeadIQ.

When was Huntington Study Group founded?

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Huntington Study Group was founded in 1993.
Huntington Study Group logo

Huntington Study Group

Research ServicesNew York, United States11-50 Employees

Based in Rochester, New York, the Huntington Study Group is a not-for-profit organization that designs and conducts clinical trials focused on Huntington’s disease. It coordinates a global collaboration of more than 800 experts at more than 130 credentialed research sites, and it operates through its wholly owned subsidiary, HSG Clinical Research, Inc. The organization works to improve knowledge and outcomes for people affected by Huntington’s disease through research, education, and collaboration. In the research services sector, it serves researchers and clinical sites by organizing and executing Huntington’s disease trials via its expansive network. In April 2024, the group announced the launch of Project AWARE 2.0, an observational study.

Section iconCompany Overview

Phone number
NAICS Code
5417 - Scientific Research and Development Services
Founded
1993
Employees
11-50

Section iconFunding & Financials

  • $1M - $10M

    Huntington Study Group's revenue is estimated to be in the range of $1M - $10M

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