Hyper IgM Foundation

Hospitals and Health CareNew York, United States0-1 Employees

Hyper   IgM   Foundation,   a   non-profit   organization,   was   founded   in   2015   by   dedicated   parents,   healthcare professionals,   and   friends.   Hyper   IgM   Syndrome   is   a   rare   disease   affecting   only   1   in   1,000,000   individuals, which   is   caused   by   a   genetic   mutation   that   severely   compromises   the   immune   system.   Those   living   with Hyper   IgM   face   a   significantly   shortened   life   span,   multiple   hospitalizations,   and   a   high   risk   of   secondary cancers.   The   only   known   cure   is   a   bone   marrow   transplant.   Due   to   its   rarity,   treatment   and   diagnosis   of   this disease   is   ad   hoc,   at   best.   Our   mission   is   to   improve   the   treatment,   quality   of   life   and   long   term   outlook   for children   and   adults   living   with   Hyper   IgM   through   research,   support,   education,   and   advocacy   to   families   and patients.

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