Hyper IgM Foundation
Hospitals and Health CareNew York, United States2-10 Employees
Hyper IgM Foundation is a nonprofit organization focused on Hyper IgM Syndrome, a rare genetic immune disorder. The condition affects about 1 in 1,000,000 individuals and significantly compromises the immune system. Founded in 2015 by parents, healthcare professionals, and friends, the foundation is based in New York City and pursues its mission through research, support, education, and advocacy for affected families and patients. The organization operates within the Hospitals and Health Care sector and maintains a very small staff. Because Hyper IgM is rare, diagnosis and treatment are often ad hoc, with the condition associated with a significantly shortened life expectancy and a high risk of secondary cancers, and the only known cure is a bone marrow transplant.