Lennox-Gastaut Syndrome (LGS) Foundation Email Format

Non-profit OrganizationsCalifornia, United States11-50 Employees

The Lennox-Gastaut Syndrome (LGS) Foundation is a small nonprofit organization based in San Diego, California, dedicated to improving the lives of people affected by Lennox-Gastaut syndrome. It aims to advance research, raise awareness, provide education, and support families affected by LGS. Its efforts address individuals with the condition, their families and caregivers, and clinicians who work with them. Through collaborative initiatives and partnerships, it engages with the broader epilepsy and rare-neurological-disorder ecosystem to expand access to information and resources.

In 2026, the foundation was recognized at the Alliance for Continuing Education in the Health Professions Annual Conference with the NAMEC Best Practices Award in Collaboration for LGS education. Earlier, it launched About LGS Treatments Kits in 2023 to provide educational materials about treatment options.

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