Insights

Strategic Partnership LuMind IDSC Foundation has a track record of multi-year collaborations with pharmaceutical and research organizations (Merck, Lilly) and engages with NIH and academic institutions, indicating openness to sponsored research, biomarkers studies, and translational research partnerships that could expand funding, clinical trial networks, and shared resources.

Clinical Trial Network The organization launched the DS-CTN in 2018 to accelerate treatment development for Alzheimer’s onset and other Down syndrome related conditions, presenting opportunities to offer trial logistics, patient recruitment channels, data management services, and investigator partnerships for sponsor-led studies.

Research Funding Leader With a history of granting about $20 million to down syndrome research and a broad international community, there is strong potential to propose sponsored research grants, co-funding opportunities, or philanthropy-aligned programs for sponsors seeking impact-driven philanthropy alongside scientific advancement.

Scale & Community As the largest online Down syndrome community with over 250,000 members and regional events serving thousands, there are robust channels for patient and caregiver education, outreach programs, digital engagement campaigns, and real-world data collection partnerships that sponsors can leverage for awareness and patient-centric studies.

Mergers & Growth Recent merging with NDSS signals intensified reach and potential for expanded programmatic collaboration, platform consolidation, and joint fundraising or programmatic initiatives that could present unified sponsorship, co-branded campaigns, and broader market access to stakeholders and families.

Similar companies to LuMind IDSC Foundation

LuMind IDSC Foundation Tech Stack

LuMind IDSC Foundation uses 8 technology products and services including UserWay, QuickBooks, Canva, and more. Explore LuMind IDSC Foundation's tech stack below.

Media & News

LuMind IDSC Foundation's Email Address Formats

LuMind IDSC Foundation uses at least 2 email formats:
LuMind IDSC Foundation Email FormatsExamplePercentage
FLast@lumindidsc.orgJDoe@lumindidsc.org
78%
Last@lumindidsc.orgDoe@lumindidsc.org
22%

Frequently Asked Questions

What is LuMind IDSC Foundation's phone number?

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You can contact LuMind IDSC Foundation's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is LuMind IDSC Foundation's official website and social media links?

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LuMind IDSC Foundation's official website is lumindidsc.org and has social profiles on LinkedIn.

How much revenue does LuMind IDSC Foundation generate?

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As of July 2026, LuMind IDSC Foundation's annual revenue is estimated to be $1M - $10M.

What is LuMind IDSC Foundation's NAICS code?

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LuMind IDSC Foundation's NAICS code is 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations.

How many employees does LuMind IDSC Foundation have currently?

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As of July 2026, LuMind IDSC Foundation has approximately 5 employees across 1 continents, including North America. Key team members include Vice President, Clinical Operations: C. B., Senior Director Of Finance: M. L. and Development Operations Associate: J. S. Explore LuMind IDSC Foundation's employee directory with LeadIQ.

What industry does LuMind IDSC Foundation belong to?

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LuMind IDSC Foundation operates in the Non-profit Organizations industry.

What technology does LuMind IDSC Foundation use?

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LuMind IDSC Foundation's tech stack includes UserWay, QuickBooks, Canva, Salesforce, SendGrid, Brevo, Hootsuite and Adobe Creative Suite.

What is LuMind IDSC Foundation's email format?

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LuMind IDSC Foundation's email format typically follows the pattern of FLast@lumindidsc.org. Find more LuMind IDSC Foundation email formats with LeadIQ.

When was LuMind IDSC Foundation founded?

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LuMind IDSC Foundation was founded in 2004.
LuMind IDSC Foundation logo

LuMind IDSC Foundation

Non-profit OrganizationsMassachusetts, United States2-10 Employees

LuMind IDSC Foundation is a nonprofit based in Burlington, Massachusetts, focused on helping people with Down syndrome achieve improved health, independence, and opportunities. The organization accelerates translational research to broaden access to therapies, diagnostics, and medical care, while also supporting families through education and community connections.
It collaborates with biopharmaceutical companies, academic institutions, NIH, and other public bodies to move research findings toward medical care options for Down syndrome. The foundation maintains a substantial online community and provides webinars, online focus groups, and regional recreational events to engage families. In September 2025, LuMind IDSC Foundation merged with the National Down Syndrome Society, reflecting a consolidation within the Down syndrome research and advocacy landscape.

Section iconCompany Overview

Phone number
NAICS Code
813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations
Founded
2004
Employees
2-10

Section iconFunding & Financials

  • $1M - $10M

    LuMind IDSC Foundation's revenue is estimated to be in the range of $1M - $10M

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