MLD Foundation Employee Directory
Wellness and Fitness ServicesOregon, United States2-10 Employees
MLD Foundation operates in the wellness and fitness services space with a focus on metachromatic leukodystrophy, a rare genetic neuro-metabolic disease. The organization emphasizes compassionate support for families, raises awareness, funds research, and promotes education related to this condition, while engaging in rare disease policy, advocacy, patient empowerment, and global newborn screening efforts. Based in West Linn, Oregon, the foundation serves as a resource for affected families and the broader rare disease community, contributing to policy discussions and awareness campaigns rather than pursuing commercial products. The group maintains a small team and centers its activities around advocacy, education, and community support to address the needs of individuals impacted by metachromatic leukodystrophy and related newborn screening initiatives.