Insights

Strategic Partnerships Opportunity to deepen collaborations with national networks and rare disease organizations, given MSF's recent partnerships with NORD and Strong research ties, enabling co-sponsored studies, patient support programs, and expanded funding avenues.

Fundraising & Grants With a 1M–10M revenue profile and active research funding history, target grantmakers, corporate philanthropy programs, and digital fundraising campaigns, leveraging recent publications and conference activity to demonstrate impact.

Research & Genetics Capitalize on ongoing genetics research and cross-institution collaborations to offer data services, participant recruitment platforms, and patient registries, aligning with academic partners and translational research sponsors.

Community Engagement Build services around education, patient support, and awareness campaigns—including medical binder tools, provider guides, and online store offerings—to drive donor engagement, sponsorships, and scalable program adoption.

Technology Enablement Leverage MSF’s tech stack and digital channels to propose cloud-based CRM, marketing automation, telehealth or virtual event solutions, and data analytics to optimize donor retention and program reach.

Similar companies to Moebius Syndrome Foundation

Moebius Syndrome Foundation Tech Stack

Moebius Syndrome Foundation uses 8 technology products and services including WordPress, Shopify, Google Workspace, and more. Explore Moebius Syndrome Foundation's tech stack below.

Media & News

Moebius Syndrome Foundation's Email Address Formats

Moebius Syndrome Foundation uses at least 2 email formats:
Moebius Syndrome Foundation Email FormatsExamplePercentage
First@moebiussyndrome.comJohn@moebiussyndrome.com
100%
First@moebiussyndrome.orgJohn@moebiussyndrome.org
100%

Frequently Asked Questions

What is Moebius Syndrome Foundation's phone number?

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You can contact Moebius Syndrome Foundation's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Moebius Syndrome Foundation's official website and social media links?

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Moebius Syndrome Foundation's official website is moebiussyndrome.org and has social profiles on LinkedIn.

How much revenue does Moebius Syndrome Foundation generate?

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As of October 2026, Moebius Syndrome Foundation's annual revenue is estimated to be $1M - $10M.

What is Moebius Syndrome Foundation's NAICS code?

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Moebius Syndrome Foundation's NAICS code is 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations.

How many employees does Moebius Syndrome Foundation have currently?

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As of October 2026, Moebius Syndrome Foundation has approximately 15 employees across 2 continents, including North America and Europe. Key team members include Vice President: S. M. Explore Moebius Syndrome Foundation's employee directory with LeadIQ.

What industry does Moebius Syndrome Foundation belong to?

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Moebius Syndrome Foundation operates in the Non-profit Organizations industry.

What technology does Moebius Syndrome Foundation use?

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Moebius Syndrome Foundation's tech stack includes WordPress, Shopify, Google Workspace, Font Awesome, Google Cloud, Constant Contact, Issuu and Vimeo.

What is Moebius Syndrome Foundation's email format?

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Moebius Syndrome Foundation's email format typically follows the pattern of First@moebiussyndrome.com. Find more Moebius Syndrome Foundation email formats with LeadIQ.

When was Moebius Syndrome Foundation founded?

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Moebius Syndrome Foundation was founded in 1994.
Moebius Syndrome Foundation logo

Moebius Syndrome Foundation

Non-profit OrganizationsColorado, United States11-50 Employees

The Moebius Syndrome Foundation is a national nonprofit organization based in Denver, Colorado, established in 1994. It provides information and support to individuals with Moebius syndrome and their families, and works to increase awareness and understanding of the condition. It also advocates for scientific research aimed at improving the diagnosis and treatment of Moebius syndrome and related conditions.

In October 2025, the foundation announced a collaboration with the National Organization for Rare Disorders to plan and develop a study focused on Moebius syndrome. This partnership demonstrates the organization's ongoing engagement with the broader rare-disease research community to advance knowledge about the condition.

Section iconCompany Overview

Phone number
NAICS Code
813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations
Founded
1994
Employees
11-50

Section iconFunding & Financials

  • $1M - $10M

    Moebius Syndrome Foundation's revenue is estimated to be in the range of $1M - $10M

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