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Mowat-Wilson Syndrome Foundation Employee Directory

Non-profit OrganizationsNevada, United States2-10 Employees

The Mowat-Wilson Syndrome Foundation is a small nonprofit organization based in Las Vegas, Nevada, founded in 2013 to support people affected by Mowat-Wilson Syndrome. Its activities focus on providing family support, raising awareness, and backing research and education related to the condition. Mowat-Wilson Syndrome is a rare genetic disorder caused by mutations or deletions in the ZEB2 gene and is associated with cognitive impairment and multiple health challenges.

The foundation maintains data initiatives for the MWS community, including a patient registry launched in 2016 and a Matrix patient tracking platform introduced in 2022. It also conducts awareness and fundraising efforts through events such as Ride for Bella and the Ultra-Niagara 500, and has partnered with organizations like One World Strong and suAzio to engage caregivers and supporters.

Find Mowat-Wilson Syndrome Foundation employees' phone numbers or email addresses

Mowat-Wilson Syndrome Foundation Global Highlights

Location
Employees

North America
11

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  • United States Of America
    11

Mowat-Wilson Syndrome Foundation's Leadership

  • Director at Mowat-Wilson Syndrome Foundation
    L. C.
    Director
    Mobile Phone
  • Director at Mowat-Wilson Syndrome Foundation
    L. N.
    Director
    Mobile Phone
  • Board Member at Mowat-Wilson Syndrome Foundation
    W. B. H.
    Board Member
    Mobile Phone
  • Treasurer at Mowat-Wilson Syndrome Foundation
    K. K.
    Treasurer
    Mobile Phone

Mowat-Wilson Syndrome Foundation Employee Metrics

100%
50%
0%
2026
2025
  • Business
  • Entrepreneurship
  • Other

Contact profiles from Mowat-Wilson Syndrome Foundation

Name
Title
Contact
Location
Last Update
  • Director at Mowat-Wilson Syndrome Foundation
    L. C.
    Director
    Mobile Phone
    United States, Connecticut
    Jun 29, 2026
  • Director at Mowat-Wilson Syndrome Foundation
    L. N.
    Director
    Mobile Phone
    United States, Georgia
    Jun 28, 2026
  • Board Member at Mowat-Wilson Syndrome Foundation
    W. B. H.
    Board Member
    Mobile Phone
    United States, South Carolina
    Jun 25, 2026
  • Treasurer at Mowat-Wilson Syndrome Foundation
    K. K.
    Treasurer
    Mobile Phone
    United States, South Carolina
    May 28, 2026

Frequently Asked Questions

What is Mowat-Wilson Syndrome Foundation known for?

Minus sign iconPlus sign iconMowat-Wilson Syndrome Foundation was founded in 2013 and operates in the Non-profit Organizations industry. Explore Mowat-Wilson Syndrome Foundation's company overview page for more information.

What is Mowat-Wilson Syndrome Foundation's most common email format?

Minus sign iconPlus sign iconMowat-Wilson Syndrome Foundation employees' email format typically follows the pattern of FirstL@mowat-wilson.org. Trying to find reliable and up-to-date employee contact data? Find more Mowat-Wilson Syndrome Foundation email formats with LeadIQ.

How many employees does Mowat-Wilson Syndrome Foundation have currently?

Minus sign iconPlus sign iconMowat-Wilson Syndrome Foundation has approximately 8 employees as of September 2026. These team members are located across 1 continents, including North America.

Who are Mowat-Wilson Syndrome Foundation's key employees and leadership?

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As of September 2026, Mowat-Wilson Syndrome Foundation's key employees include:

  • Director: L. C.
  • Director: L. N.
  • Board Member: W. B. H.
  • Treasurer: K. K.

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