Insights

Strong Community Presence As a leading global advocate for myotonic dystrophy, the MDF has established itself as a trusted resource for patients, families, and healthcare providers worldwide. This extensive community engagement presents opportunities for partnerships in patient education, digital outreach, and localized support programs.

Focused Research & Public Awareness With active collaborations with government agencies like NIH and CDC, MDF shows an openness to research tools, data collection, and program support. This opens pathways for technology vendors, research firms, and funding organizations to collaborate on innovative projects or sponsorship opportunities.

Digital & Fundraising Initiatives The organization’s recent online survey campaigns and #MyGratitude initiative demonstrate a proactive digital engagement strategy. Technology providers specializing in survey platforms, social media marketing, and donor engagement tools could find strategic partnerships here.

Expanding Fundraising Capabilities Recent hires in fundraising and operations indicate a focus on expanding revenue streams. This creates opportunities for financial services, event technology, and donation platform providers to support MDF’s growth and streamline its fundraising efforts.

Potential for Strategic Sponsorships Given MDF’s alliances with federal agencies and its role as a primary resource for newly diagnosed patients, corporate partners in healthcare, biotechnology, and patient services could explore sponsorship or joint ventures to enhance brand visibility while supporting the organization’s mission.

Myotonic Dystrophy Foundation Tech Stack

Myotonic Dystrophy Foundation uses 8 technology products and services including Facebook Pixel, Varnish, Amazon Web Services, and more. Explore Myotonic Dystrophy Foundation's tech stack below.

  • Facebook Pixel
    Analytics
  • Varnish
    Caching
  • Amazon Web Services
    Cloud Hosting
  • Font Awesome
    Font Scripts
  • Salesforce Marketing Cloud Account Engagement
    Marketing Automation
  • reCAPTCHA
    Security
  • GoDaddy
    Web Hosting
  • Facebook
    Widgets

Media & News

Myotonic Dystrophy Foundation's Email Address Formats

Myotonic Dystrophy Foundation uses at least 1 format(s):
Myotonic Dystrophy Foundation Email FormatsExamplePercentage
First.Last@myotonic.orgJohn.Doe@myotonic.org
100%

Frequently Asked Questions

Where is Myotonic Dystrophy Foundation's headquarters located?

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Myotonic Dystrophy Foundation's main headquarters is located at 663 13th Street Suite 100 Oakland, California United States. The company has employees across 1 continents, including North America.

What is Myotonic Dystrophy Foundation's phone number?

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You can contact Myotonic Dystrophy Foundation's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Myotonic Dystrophy Foundation's official website and social media links?

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Myotonic Dystrophy Foundation's official website is myotonic.org and has social profiles on LinkedIn.

What is Myotonic Dystrophy Foundation's NAICS code?

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Myotonic Dystrophy Foundation's NAICS code is 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations.

How many employees does Myotonic Dystrophy Foundation have currently?

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As of April 2026, Myotonic Dystrophy Foundation has approximately 21 employees across 1 continents, including North America. Key team members include Chief Executive Officer: T. S.Chief Scientific Officer: A. R.Owner: N. A.. Explore Myotonic Dystrophy Foundation's employee directory with LeadIQ.

What industry does Myotonic Dystrophy Foundation belong to?

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Myotonic Dystrophy Foundation operates in the Non-profit Organizations industry.

What technology does Myotonic Dystrophy Foundation use?

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Myotonic Dystrophy Foundation's tech stack includes Facebook PixelVarnishAmazon Web ServicesFont AwesomeSalesforce Marketing Cloud Account EngagementreCAPTCHAGoDaddyFacebook.

What is Myotonic Dystrophy Foundation's email format?

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Myotonic Dystrophy Foundation's email format typically follows the pattern of First.Last@myotonic.org. Find more Myotonic Dystrophy Foundation email formats with LeadIQ.

When was Myotonic Dystrophy Foundation founded?

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Myotonic Dystrophy Foundation was founded in 2007.

Myotonic Dystrophy Foundation

Non-profit OrganizationsCalifornia, United States11-50 Employees

We envision a world with treatments and a cure for myotonic dystrophy (DM). Our mission is Community, Care, and a Cure. 

We created the Myotonic Dystrophy Foundation (MDF) to enhance the quality of life of people living with myotonic dystrophy (DM) and to drive research focused on treatments and a cure. DM is an inherited disorder that can appear at any age and manifests differently in every person.

MDF is the leading global advocate helping patients and families navigate the DM disease process, and is often the first resource contacted by newly-diagnosed patients, their families, their social workers and their physicians around the world. For many international patients, MDF is often the only resources and support they are able to locate.

Currently tens of thousands of people living with myotonic dystrophy, their families & friends make up the MDF community.

Based in Oakland, California, MDF partners with, and complements the work of, the National Institutes of Health (NIH), the Centers for Disease Control and Prevention (CDC), and other governmental, academic, and philanthropic agencies.

Section iconCompany Overview

Headquarters
663 13th Street Suite 100 Oakland, California United States
Phone number
NAICS Code
813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations
Founded
2007
Employees
11-50

Section iconFunding & Financials

  • $10M$25M

    Myotonic Dystrophy Foundation's revenue is estimated to be in the range of $10M$25M

Section iconFunding & Financials

  • $10M$25M

    Myotonic Dystrophy Foundation's revenue is estimated to be in the range of $10M$25M

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