Insights

Strong Advocacy Network Myotonic Dystrophy Foundation is a highly regarded global advocate that connects deeply with patients, families, and healthcare providers, making it an ideal partner for health tech or support service providers aiming to reach a dedicated and engaged community.

Technologically Active Community The organization utilizes various digital tools including Google Analytics, Facebook Pixel, and AWS, indicating openness to technical collaborations, digital marketing solutions, or data analytics services to enhance their outreach and engagement efforts.

Ongoing Research & Education With recent initiatives like care recommendations and large-scale community surveys, MDF demonstrates a focus on educational content and data collection, presenting opportunities for companies offering medical research tools, educational platforms, or survey technology.

Funding & Partnerships Though revenue figures are modest, MDF’s collaborations with government agencies like NIH and CDC highlight potential avenues for partnership with organizations involved in health funding, policy, or medical research funding platforms.

Community-Centric Focus Serving a diverse global patient community and actively engaging in awareness campaigns such as #MyGratitude, MDF is well-positioned for organizations offering patient engagement solutions, community management tools, or social impact initiatives to support their ongoing advocacy efforts.

Myotonic Dystrophy Foundation Tech Stack

Myotonic Dystrophy Foundation uses 8 technology products and services including Facebook Pixel, Varnish, Amazon Web Services, and more. Explore Myotonic Dystrophy Foundation's tech stack below.

  • Facebook Pixel
    Analytics
  • Varnish
    Caching
  • Amazon Web Services
    Cloud Hosting
  • Font Awesome
    Font Scripts
  • Salesforce Marketing Cloud Account Engagement
    Marketing Automation
  • reCAPTCHA
    Security
  • GoDaddy
    Web Hosting
  • Facebook
    Widgets

Media & News

Myotonic Dystrophy Foundation's Email Address Formats

Myotonic Dystrophy Foundation uses at least 1 format(s):
Myotonic Dystrophy Foundation Email FormatsExamplePercentage
First.Last@myotonic.orgJohn.Doe@myotonic.org
50%
First.Last@myotonic.orgJohn.Doe@myotonic.org
50%

Frequently Asked Questions

Where is Myotonic Dystrophy Foundation's headquarters located?

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Myotonic Dystrophy Foundation's main headquarters is located at 663 13th St, Suite 100 Oakland, California 94612, US. The company has employees across 1 continents, including North America.

What is Myotonic Dystrophy Foundation's phone number?

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You can contact Myotonic Dystrophy Foundation's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Myotonic Dystrophy Foundation's official website and social media links?

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Myotonic Dystrophy Foundation's official website is myotonic.org and has social profiles on LinkedIn.

What is Myotonic Dystrophy Foundation's SIC code NAICS code?

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Myotonic Dystrophy Foundation's SIC code is 8641 - Civic, Social, and Fraternal Associations NAICS code is 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations.

How many employees does Myotonic Dystrophy Foundation have currently?

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As of October 2025, Myotonic Dystrophy Foundation has approximately 22 employees across 1 continents, including North America. Key team members include Chief Scientific Officer: A. R.Owner: N. A.Vice President, Global Head Of Patient Advocacy: M. W.. Explore Myotonic Dystrophy Foundation's employee directory with LeadIQ.

What industry does Myotonic Dystrophy Foundation belong to?

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Myotonic Dystrophy Foundation operates in the Non-profit Organizations industry.

What technology does Myotonic Dystrophy Foundation use?

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Myotonic Dystrophy Foundation's tech stack includes Facebook PixelVarnishAmazon Web ServicesFont AwesomeSalesforce Marketing Cloud Account EngagementreCAPTCHAGoDaddyFacebook.

What is Myotonic Dystrophy Foundation's email format?

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Myotonic Dystrophy Foundation's email format typically follows the pattern of First.Last@myotonic.org. Find more Myotonic Dystrophy Foundation email formats with LeadIQ.

When was Myotonic Dystrophy Foundation founded?

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Myotonic Dystrophy Foundation was founded in 2007.
Myotonic Dystrophy Foundation

Myotonic Dystrophy Foundation

Non-profit OrganizationsUnited States11-50 Employees

We envision a world with treatments and a cure for myotonic dystrophy (DM). Our mission is Community, Care, and a Cure. 

We created the Myotonic Dystrophy Foundation (MDF) to enhance the quality of life of people living with myotonic dystrophy (DM) and to drive research focused on treatments and a cure. DM is an inherited disorder that can appear at any age and manifests differently in every person.

MDF is the leading global advocate helping patients and families navigate the DM disease process, and is often the first resource contacted by newly-diagnosed patients, their families, their social workers and their physicians around the world. For many international patients, MDF is often the only resources and support they are able to locate.

Currently tens of thousands of people living with myotonic dystrophy, their families & friends make up the MDF community.

Based in Oakland, California, MDF partners with, and complements the work of, the National Institutes of Health (NIH), the Centers for Disease Control and Prevention (CDC), and other governmental, academic, and philanthropic agencies.

Section iconCompany Overview

Headquarters
663 13th St, Suite 100 Oakland, California 94612, US
Phone number
SIC Code
8641 - Civic, Social, and Fraternal Associations
NAICS Code
813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations
Founded
2007
Employees
11-50

Section iconFunding & Financials

  • $10M$25M

    Myotonic Dystrophy Foundation's revenue is estimated to be in the range of $10M$25M

Section iconFunding & Financials

  • $10M$25M

    Myotonic Dystrophy Foundation's revenue is estimated to be in the range of $10M$25M

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