Insights

Global Advocacy The Myotonic Dystrophy Foundation serves as a leading global advocate for patients and families affected by myotonic dystrophy, positioning the organization as an authoritative resource with widespread reach. Leveraging partnerships with governmental and philanthropic entities, there are opportunities to collaborate on public health initiatives and awareness campaigns.

Community Engagement Through community-wide surveys and campaigns like #MyGratitude, Myotonic fosters engagement with its diverse community of patients, families, and supporters. These initiatives create avenues for personalized outreach strategies and the development of targeted products or services catering to the specific needs and preferences of this community.

Research Advocacy The foundation's involvement in driving research, including the publication of Care Recommendations, demonstrates a commitment to advancing knowledge and treatment options for myotonic dystrophy. This presents opportunities for collaborations with research institutions, pharmaceutical companies, and healthcare providers in the development and promotion of innovative solutions.

Fundraising Innovation With the appointment of a Fundraising and Operations Coordinator, Myotonic is actively expanding its fundraising efforts and operational capabilities. Sales professionals can explore partnership opportunities, sponsorships, and fundraising events to support the foundation's mission while gaining visibility among a socially conscious and engaged audience.

Technological Integration The foundation's tech stack, including tools like Google Analytics and PHP, indicates a readiness to leverage technology for communication, data analysis, and engagement. Sales representatives can explore collaborations around tech-driven solutions, digital marketing strategies, and online platforms to enhance visibility and donor engagement.

Myotonic Dystrophy Foundation Tech Stack

Myotonic Dystrophy Foundation uses 8 technology products and services including Google Analytics, Varnish, Fastly, and more. Explore Myotonic Dystrophy Foundation's tech stack below.

  • Google Analytics
    Analytics
  • Varnish
    Caching
  • Fastly
    Content Delivery Network
  • Font Awesome
    Font Scripts
  • Google Maps
    Maps
  • PHP
    Programming Languages
  • Bootstrap
    UI Frameworks
  • AddToAny
    Widgets

Media & News

Myotonic Dystrophy Foundation's Email Address Formats

Myotonic Dystrophy Foundation uses at least 1 format(s):
Myotonic Dystrophy Foundation Email FormatsExamplePercentage
first.last@myotonic.orgJohn.Doe@myotonic.org
50%
first.last@myotonic.orgJohn.Doe@myotonic.org
50%

Frequently Asked Questions

Where is Myotonic Dystrophy Foundation's headquarters located?

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Myotonic Dystrophy Foundation's main headquarters is located at 663 13th St Suite 100 Oakland, California 94612 US. The company has employees across 1 continents, including North America.

What is Myotonic Dystrophy Foundation's phone number?

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You can contact Myotonic Dystrophy Foundation's main corporate office by phone at +1-866-968-6642. For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Myotonic Dystrophy Foundation's official website and social media links?

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Myotonic Dystrophy Foundation's official website is myotonic.org and has social profiles on LinkedIn.

How much revenue does Myotonic Dystrophy Foundation generate?

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As of June 2024, Myotonic Dystrophy Foundation's annual revenue reached $750K.

What is Myotonic Dystrophy Foundation's SIC code?

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Myotonic Dystrophy Foundation's SIC code is 8641 - Civic, Social, and Fraternal Associations.

How many employees does Myotonic Dystrophy Foundation have currently?

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As of June 2024, Myotonic Dystrophy Foundation has approximately 21 employees across 1 continents, including North America. Key team members include Chief Executive Officer: T. S.Chief Scientific Officer: A. R.Chief Science Officer: E. A.. Explore Myotonic Dystrophy Foundation's employee directory with LeadIQ.

What industry does Myotonic Dystrophy Foundation belong to?

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Myotonic Dystrophy Foundation operates in the Non-profit Organizations industry.

What technology does Myotonic Dystrophy Foundation use?

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Myotonic Dystrophy Foundation's tech stack includes Google AnalyticsVarnishFastlyFont AwesomeGoogle MapsPHPBootstrapAddToAny.

What is Myotonic Dystrophy Foundation's email format?

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Myotonic Dystrophy Foundation's email format typically follows the pattern of . Find more Myotonic Dystrophy Foundation email formats with LeadIQ.

When was Myotonic Dystrophy Foundation founded?

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Myotonic Dystrophy Foundation was founded in 2007.
Myotonic Dystrophy Foundation

Myotonic Dystrophy Foundation

Non-profit OrganizationsCalifornia, United States2-10 Employees

We envision a world with treatments and a cure for myotonic dystrophy (DM). Our mission is Community, Care, and a Cure. 

We created the Myotonic Dystrophy Foundation (MDF) to enhance the quality of life of people living with myotonic dystrophy (DM) and to drive research focused on treatments and a cure. DM is an inherited disorder that can appear at any age and manifests differently in every person.

MDF is the leading global advocate helping patients and families navigate the DM disease process, and is often the first resource contacted by newly-diagnosed patients, their families, their social workers and their physicians around the world. For many international patients, MDF is often the only resources and support they are able to locate.

Currently tens of thousands of people living with myotonic dystrophy, their families & friends make up the MDF community.

Based in Oakland, California, MDF partners with, and complements the work of, the National Institutes of Health (NIH), the Centers for Disease Control and Prevention (CDC), and other governmental, academic, and philanthropic agencies.

Section iconCompany Overview

Headquarters
663 13th St Suite 100 Oakland, California 94612 US
Phone number
+1-866-968-6642
SIC Code
8641 - Civic, Social, and Fraternal Associations
Founded
2007
Employees
2-10

Section iconFunding & Financials

  • $10M

    Myotonic Dystrophy Foundation's revenue is in the range of $10M

Section iconFunding & Financials

  • $10M

    Myotonic Dystrophy Foundation's revenue is in the range of $10M

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