Narcolepsy Network Email Format

Non-profit OrganizationsWashington, United States11-50 Employees

Narcolepsy Network is a U.S.-based 501(c)(3) nonprofit and member-led patient advocacy organization focused on narcolepsy, idiopathic hypersomnia, and related sleep disorders. For nearly four decades it has worked to advance research, support patient communities through groups, and host a national conference that helps people feel less alone. The organization offers programs and resources such as clinical and research updates, educational webinars, and support groups, while pursuing advocacy and awareness efforts and maintaining a neutral stance in collaborations with industry and academia. Based in Lynnwood, Washington, the group serves people across the United States living with narcolepsy and IH, along with related sleep disorders. Recent leadership changes in 2026 include the appointment of Liz Burgess as Executive Director and the addition of Desireé Gorbea-Finalet and Mike Heil to the board.

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