National Fragile X Foundation Email Format
Non-profit OrganizationsDistrict of Columbia, United States11-50 Employees
The National Fragile X Foundation is a United States nonprofit organization focused on Fragile X-associated disorders. Founded in 1984, it supports families through educational and emotional resources and seeks to raise public and professional awareness while advancing research toward better treatments and a cure. Its work centers on uniting the Fragile X community to improve lives and to promote scientific progress. Based in Washington, DC, the organization operates as a small nonprofit. Recent activity includes participation in the NFXF 20th International Fragile X Conference in May 2026. It also announced a planned partnership with the LivJoy Foundation to host a females with FXS-focused webinar series in 2026.