What departments does National Organization for Rare Disorders have?

National Organization for Rare Disorders has employees across 11 departments including Operations, Finance, Engineering, Community & Social Services, Research.

What is the largest department at National Organization for Rare Disorders?

The largest department at National Organization for Rare Disorders is Legal with 4 employees.

Where are National Organization for Rare Disorders employees located globally?

National Organization for Rare Disorders has employees across 3 continents and 4 countries including India, United Kingdom Of Great Britain And Northern Ireland, United States Of America, Canada.

How has National Organization for Rare Disorders's team size changed over time?

National Organization for Rare Disorders's team has decreased from approximately 210 to 153 employees based on available data.

National Organization for Rare Disorders Employee Directory

Non-profit OrganizationsConnecticut, United States51-200 Employees

The National Organization for Rare Disorders (NORD) is an independent nonprofit that supports individuals affected by rare diseases and the networks that assist them. It coordinates a broad alliance of more than 350 patient organizations and pursues education, advocacy, research, and patient support to advance identification, treatment, and, where possible, cures. NORD engages a wide range of stakeholders, including patients, families, researchers, clinicians, medical students, and companies developing orphan products.

Based in Danbury, Connecticut, NORD works with U.S. government agencies such as the NIH and FDA to advance policy and resources for the rare-disease community. In June 2026, the Facial Pain Registry reached its one-year anniversary, a patient data initiative developed in partnership with NORD on the IAMRARE platform.

National Organization for Rare Disorders Global Highlights

North America
214

United States Of America
213
Canada
1

Europe
2

United Kingdom Of Great Britain And Northern Ireland
2

Asia
1

India
1

National Organization for Rare Disorders's Leadership

P. G.
Chief Executive Officer
Mobile Phone
Email
K. E.
Chief Strategy And Operations Officer
Mobile Phone
Email
E. N.
Chief Medical And Scientific Officer
Mobile Phone
Email
E. N.
Chief Medical And Scientific Officer
Mobile Phone
Email
N. K.
Vp & Chief Financial Officer
Mobile Phone
Email
A. M.
Vice President Of Development
Mobile Phone
Email
P. C.
Vice President Of Community And Corporate Affairs
Mobile Phone
Email
T. S.
Vice President Of Research & Clinical Programs
Mobile Phone
Email

National Organization for Rare Disorders Employee Metrics

100%

50%

0%

2026

2025

Community & Social Services
Legal
Research
Marketing
Accounting
Other
Engineering
Information Technology
Analytics
Business
Administrative
Arts & Design
Education

Contact profiles from National Organization for Rare Disorders

Name

Title

Contact Info

Location

Last Update

K. E.
Chief Strategy And Operations Officer
Mobile Phone
Email
May 30, 2026
P. G.
Chief Executive Officer
Mobile Phone
Email
United StatesMassachusetts
Apr 14, 2026
E. N.
Chief Medical And Scientific Officer
Mobile Phone
Email
United StatesMassachusetts
Jan 29, 2026
N. K.
Vp & Chief Financial Officer
Mobile Phone
Email
United StatesMassachusetts
May 30, 2026
A. S. M.
President Emeritus
Mobile Phone
Email
United StatesConnecticut
Oct 21, 2024
A. L.
President Southeastern Region
Mobile Phone
Email
Oct 17, 2024
C. A.
Chairman
Mobile Phone
Email
Oct 23, 2024
D. D.
President
Mobile Phone
Email
Oct 16, 2024
E. N.
Chief Medical And Scientific Officer
Mobile Phone
Email
Oct 23, 2024
J. B.
Chairman
Mobile Phone
Email
Oct 17, 2024

Frequently Asked Questions

What is National Organization for Rare Disorders known for?

National Organization for Rare Disorders was founded in 1983 operates in the Non-profit Organizations industry. The company's main headquarters is located in 55 Kenosia Avenue Danbury, Connecticut 06810 United States; you can contact the main corporate office by phone at

+1-203-744-****

. Explore National Organization for Rare Disorders's company overview page for more information.

What is National Organization for Rare Disorders's most common email format?

National Organization for Rare Disorders employees' email format typically follows the pattern of . Trying to find reliable and up-to-date employee contact data? Find more National Organization for Rare Disorders email formats with LeadIQ.

How many employees does National Organization for Rare Disorders have currently?

National Organization for Rare Disorders has approximately 191 employees as of June 2026. These team members are located across 3 continents, including North AmericaEuropeAsia.

Who are National Organization for Rare Disorders's key employees and leadership?

As of June 2026, National Organization for Rare Disorders's key employees include:

Chief Executive Officer: P. G.
Chief Strategy And Operations Officer: K. E.
Chief Medical And Scientific Officer: E. N.
Chief Medical And Scientific Officer: E. N.
Vp & Chief Financial Officer: N. K.

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National Organization for Rare Disorders Employee Directory

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