National Scleroderma Foundation
Non-profit OrganizationsMassachusetts, United States51-200 Employees
The National Scleroderma Foundation is a U.S.-based nonprofit organization established in 1998 to advance medical research, raise awareness of scleroderma, and provide education and support to people affected by the disease and their networks. It combines donor and volunteer engagement with funding for peer‑reviewed research, aiming to uncover the causes and mechanisms of scleroderma while supporting those living with the condition. The foundation operates through a national network that includes a conference—described as a central educational forum for the scleroderma community—and local chapters that organize awareness and fundraising events throughout the year. Its leadership structure features a volunteer board, a Medical & Scientific Advisory Board, and a professional staff committed to its mission, guided by values of care, connection, integrity, and trust. The organization is based in Boston, Massachusetts, and serves a broad national audience through programs that emphasize education, community building, and scientific advancement.
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