Insights

NF Community Outreach Non-profit focused on Neurofibromatosis with regional reach across several states, presenting opportunities to partner on patient education programs, fundraising initiatives, and awareness campaigns that can expand sponsor networks and grant opportunities.

Research & Collaboration Active emphasis on funding and advancing NF research suggests potential for collaborations with researchers, pharma, and biotech firms seeking patient access programs, clinical trial partnerships, or co-branded awareness initiatives.

Strategic Partnerships Recent collaboration news with SpringWorks Therapeutics indicates openness to sponsorships and in-person/online program support, signaling a strong channel for enterprise sponsorships, event marketing, and program sponsorship packages.

Technology Stack Digital presence powered by WordPress, Shopify/WooCommerce, and CRM potential (iCIMS) offers avenues for targeted fundraising campaigns, membership drives, donor management services, and e-commerce partnerships around NF-related products.

Funding Signals Revenue in the low seven-figure range and a small internal team imply a cost-conscious partner with high impact potential; suitable targets include grant programs, CSR engagements, and scalable sponsorship opportunities aligned with NF awareness and education goals.

Similar companies to Neurofibromatosis Midwest

Neurofibromatosis Midwest Tech Stack

Neurofibromatosis Midwest uses 8 technology products and services including iCIMS, Open Graph, MySQL, and more. Explore Neurofibromatosis Midwest's tech stack below.

  • iCIMS
    Applicant Tracking Systems
  • Open Graph
    Content Management System
  • MySQL
    Database
  • Shopify
    E-commerce
  • WooCommerce
    E-commerce
  • jQuery
    Javascript Libraries
  • jQuery Migrate
    Javascript Libraries
  • WordPress Block Editor
    Page Builders

Neurofibromatosis Midwest's Email Address Formats

Neurofibromatosis Midwest uses at least 1 format(s):
Neurofibromatosis Midwest Email FormatsExamplePercentage
First@nfmidwest.orgJohn@nfmidwest.org
60%
FLast@nfmidwest.orgJDoe@nfmidwest.org
20%
Last@nfmidwest.orgDoe@nfmidwest.org
20%

Frequently Asked Questions

Where is Neurofibromatosis Midwest's headquarters located?

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Neurofibromatosis Midwest's main headquarters is located at 473 Dunham Road Suite 3 St. Charles, Illinois 60174 United States. The company has employees across 1 continents, including North America.

What is Neurofibromatosis Midwest's phone number?

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You can contact Neurofibromatosis Midwest's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Neurofibromatosis Midwest's official website and social media links?

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Neurofibromatosis Midwest's official website is nfmidwest.org and has social profiles on LinkedIn.

What is Neurofibromatosis Midwest's NAICS code?

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Neurofibromatosis Midwest's NAICS code is 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations.

How many employees does Neurofibromatosis Midwest have currently?

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As of June 2026, Neurofibromatosis Midwest has approximately 7 employees across 1 continents, including North America. Key team members include Event And Fundraising Coordinator: M. W.. Explore Neurofibromatosis Midwest's employee directory with LeadIQ.

What industry does Neurofibromatosis Midwest belong to?

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Neurofibromatosis Midwest operates in the Non-profit Organizations industry.

What technology does Neurofibromatosis Midwest use?

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Neurofibromatosis Midwest's tech stack includes iCIMSOpen GraphMySQLShopifyWooCommercejQueryjQuery MigrateWordPress Block Editor.

What is Neurofibromatosis Midwest's email format?

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Neurofibromatosis Midwest's email format typically follows the pattern of First@nfmidwest.org. Find more Neurofibromatosis Midwest email formats with LeadIQ.

When was Neurofibromatosis Midwest founded?

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Neurofibromatosis Midwest was founded in 1982.

Neurofibromatosis Midwest

Non-profit OrganizationsIllinois, United States2-10 Employees

Neurofibromatosis Midwest is a non-profit organization focused on addressing the needs of people affected by Neurofibromatosis through care, comfort, education, information, and resources that support treatment, prevention, and pursuit of a cure. Based in St. Charles, Illinois, the group serves Illinois, Indiana, Iowa, Kentucky, and Missouri and has evolved since its establishment in 1982 as a coalition of families impacted by NF who work to educate individuals, healthcare providers, and the broader medical research community. The organization emphasizes both ongoing research and high-quality patient care, reflecting its dual commitment to advancing understanding of NF and improving living experiences for affected individuals and families. A recent development highlights a collaboration with SpringWorks Therapeutics to sponsor programs for those affected by NF, indicating active partnerships to expand its reach and services.

Section iconCompany Overview

Headquarters
473 Dunham Road Suite 3 St. Charles, Illinois 60174 United States
Phone number
NAICS Code
813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations
Founded
1982
Employees
2-10

Section iconFunding & Financials

  • $1M$10M

    Neurofibromatosis Midwest's revenue is estimated to be in the range of $1M$10M

Section iconFunding & Financials

  • $1M$10M

    Neurofibromatosis Midwest's revenue is estimated to be in the range of $1M$10M

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