Osteogenesis Imperfecta Foundation Email Format

Non-profit OrganizationsMaryland, United States11-50 Employees

The Osteogenesis Imperfecta Foundation is a nonprofit national health organization focused on supporting individuals affected by osteogenesis imperfecta (OI). Its mission emphasizes improving quality of life through a combination of research, education, awareness, and mutual support for people coping with the condition. Based in Gaithersburg, Maryland, the foundation serves as a dedicated resource within the OI community, connecting patients, families, and stakeholders to information and initiatives that advance understanding and care.

Serving a niche within the broader nonprofit and rare-disease landscape, the organization partners with international and domestic collaborators and participates in events such as National OI Awareness Week. The foundation’s activities include coordinating research efforts, educational outreach, and community-oriented programs designed to address the practical and emotional challenges faced by those living with OI, reflecting its role as a centralized hub for advocacy and support in this area.

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