PCD Foundation Employee Directory

Non-profit OrganizationsMinnesota, United States2-10 Employees

The PCD Foundation is a nonprofit organization focused on inherited ciliary disorders, with activities centered on advancing research, increasing public awareness, and offering information and support to individuals affected by these conditions and their caregivers. Its work addresses three core challenges in the field—awareness, access to specialized care and information, and limited opportunities for government or industry research funding—aiming to improve diagnosis, care, and ultimately pursue a cure for primary ciliary dyskinesia (PCD). Based in Minneapolis, Minnesota, the organization serves patients and families navigating a rare disease landscape and collaborates on initiatives such as partnerships with pharmaceutical and research entities, evidenced by a recent collaboration to produce a patient-focused video project. The foundation operates within the nonprofit sector and maintains a presence online at its domain, reflecting its role as a resource and advocate for the PCD community.

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