Insights

Fundraising potential The foundation operates as a volunteer-run 501(c)(3) with annual revenue under $1M and relies on donations and government grants. There is an opportunity to introduce scalable fundraising platforms, sponsor programs, and grant-writing services to optimize donor acquisition and grant performance.

Research partnerships Recent collaboration activities include partnerships with the American Society of Gene & Cell Therapy and a research grants program. This indicates openness to scientific collaborations, sponsored research, and data/registry solutions that can be monetized through academic and biotech partnerships.

Global engagement Global Partners network spans Spain, the UK, France, and Australia, suggesting a receptive audience for international outreach tools, multilingual content services, and global donor networks, as well as licensed education and awareness campaigns.

Awareness and events PMSF sponsors international conferences and hosts webinars and movement fundraisers, signaling demand for event sponsorship packages, virtual event platforms, and patient advocacy programs that tie corporate sponsorship to visibility and community impact.

Education and guidelines Launches like Nutrition Guidelines and ongoing family education initiatives create opportunities for content licensing, e-learning modules, and partnership campaigns with healthcare providers and nutraceuticals seeking to reach PMS families.

Similar companies to Phelan-McDermid Syndrome Foundation

Phelan-McDermid Syndrome Foundation Tech Stack

Phelan-McDermid Syndrome Foundation uses 8 technology products and services including Amazon Web Services, WordPress, Shopify, and more. Explore Phelan-McDermid Syndrome Foundation's tech stack below.

Media & News

Phelan-McDermid Syndrome Foundation's Email Address Formats

Phelan-McDermid Syndrome Foundation uses at least 2 email formats:
Phelan-McDermid Syndrome Foundation Email FormatsExamplePercentage
First@pmsf.orgJohn@pmsf.org
86%
First.Last@pmsf.orgJohn.Doe@pmsf.org
14%

Frequently Asked Questions

What is Phelan-McDermid Syndrome Foundation's phone number?

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You can contact Phelan-McDermid Syndrome Foundation's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Phelan-McDermid Syndrome Foundation's official website and social media links?

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Phelan-McDermid Syndrome Foundation's official website is pmsf.org and has social profiles on LinkedIn.

How much revenue does Phelan-McDermid Syndrome Foundation generate?

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As of July 2026, Phelan-McDermid Syndrome Foundation's annual revenue is estimated to be <$1M.

What is Phelan-McDermid Syndrome Foundation's NAICS code?

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Phelan-McDermid Syndrome Foundation's NAICS code is 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations.

How many employees does Phelan-McDermid Syndrome Foundation have currently?

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As of July 2026, Phelan-McDermid Syndrome Foundation has approximately 24 employees across 1 continents, including North America. Key team members include Chief Executive Officer: R. B. and Owner: D. B. Explore Phelan-McDermid Syndrome Foundation's employee directory with LeadIQ.

What industry does Phelan-McDermid Syndrome Foundation belong to?

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Phelan-McDermid Syndrome Foundation operates in the Non-Profit Organization Management industry.

What technology does Phelan-McDermid Syndrome Foundation use?

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Phelan-McDermid Syndrome Foundation's tech stack includes Amazon Web Services, WordPress, Shopify, Google Workspace, Asana, Trustpilot, Imperva and Zoom.

What is Phelan-McDermid Syndrome Foundation's email format?

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Phelan-McDermid Syndrome Foundation's email format typically follows the pattern of First@pmsf.org. Find more Phelan-McDermid Syndrome Foundation email formats with LeadIQ.

When was Phelan-McDermid Syndrome Foundation founded?

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Phelan-McDermid Syndrome Foundation was founded in 2002.
Phelan-McDermid Syndrome Foundation logo

Phelan-McDermid Syndrome Foundation

Non-Profit Organization ManagementFlorida, United States11-50 Employees

The Phelan-McDermid Syndrome Foundation (PMSF) is a nonprofit organization based in Venice, Florida, dedicated to supporting individuals affected by Phelan-McDermid Syndrome (22q13 deletion syndrome) and advancing research related to PMS. The foundation provides family support, education, and resources intended to improve the quality of life for people with PMS, who may also experience autism, epilepsy, and related developmental challenges, and it collaborates with researchers to expand medical knowledge and potential therapies. Its activities include funding and promoting research, organizing education and awareness efforts, and fostering a global network through partnerships with PMS groups in several countries, while hosting international conferences and scientific symposia for those affected. PMSF operates as a volunteer-run 501(c)(3) organization that relies on donations from families and supporters, and it emphasizes inclusion and advocacy within the broader rare and genetic-disability communities. A recent initiative highlighted by PMSF includes the launch of Nutrition Guidelines for Phelan-McDermid Syndrome, reflecting ongoing programs to expand care resources, along with partnerships and events aimed at advancing diagnosis, testing, and awareness.

Section iconCompany Overview

Phone number
Website
pmsf.org
NAICS Code
813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations
Founded
2002
Employees
11-50

Section iconFunding & Financials

  • <$1M

    Phelan-McDermid Syndrome Foundation's revenue is estimated to be in the range of <$1M

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