Prader-Willi Syndrome Association | USA Employee Directory

Non-profit OrganizationsFlorida, United States11-50 Employees

Prader-Willi Syndrome Association USA is a non-profit organization based in Brandon, Florida, with a workforce of 11-50 employees. It is an organization of families and professionals that works to raise awareness, provide support, deliver education and advocacy, and promote and fund research aimed at improving the quality of life for individuals affected by Prader-Willi syndrome. The organization maintains a website at pwsausa.org and engages in various initiatives and collaborations as part of its activities, including launching programs such as the Advocacy Ambassador Program in December 2025 and the Rare Aware Art Share project, as well as partnering with international organizations and participating in conferences. Historically, PWSA USA has organized events like the Clint Hurdle Hot Stove Dinner since 2015 and has participated in national and international events such as the United in Hope conference. The organization emphasizes community engagement and service through a network of families and professionals.

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