Rare Disease Data Trust (RDDT) Employee Directory

Hospitals and Health CareTennessee, United States2-10 Employees

Rare Disease Data Trust, based in Nashville, Tennessee, operates in the hospitals and health care sector. It partners with community-based provider health organizations serving roughly 400,000 patient lives to commercialize their de-identified health data for compliant, commercially sponsored searches by bio-pharma sponsors seeking undiagnosed patients with rare and ultra-rare diseases. The goal is to reduce the diagnostic odyssey experienced by patients by enabling targeted data-driven outreach while preserving privacy.

Its primary customers are the community-based providers supplying the data and the bio-pharma entities funding the searches. The organization is a small team focused on facilitating compliant data-sharing partnerships within health care.

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