Insights

Growth momentum Rare Patient Voice has demonstrated sustained growth, highlighted by expansion into Oceania in 2022 and a presence on the Inc. 5000 list in 2022, indicating a scalable model and proven market demand that can be leveraged to upsell larger, international research programs.

Acquisition momentum Recent news confirms strategic interest from a larger analytics player, Konovo Insights, acquiring Rare Patient Voice in 2026, suggesting the value of their patient recruitment capabilities and a potential channel for formal partnership discussions or transition opportunities.

High patient engagement The company has paid patients over 15 million dollars since 2013, underscoring strong participant incentives, reliable turnout, and a mature monetization model that can appeal to clients needing robust recruitment for diverse conditions.

Global reach With operations extending to Australia and New Zealand, plus established workflows through thousands of patient advocacy groups, there is an opportunity to position as a global recruitment partner for multinational studies demanding diverse patient panels.

Industry positioning Serving as a focused Research Services provider specialized in patient and caregiver perspectives, Rare Patient Voice sits among mid-market recruitment firms with comparable peers; this presents a doorway to cross-sell adjacent services such as study design input, advisory support, or expanded recruitment for rare disease programs.

Similar companies to Rare Patient Voice

Rare Patient Voice Tech Stack

Rare Patient Voice uses 8 technology products and services including UserWay, Google Ads, LinkedIn Ads, and more. Explore Rare Patient Voice's tech stack below.

Media & News

Rare Patient Voice's Email Address Formats

Rare Patient Voice uses at least 4 email formats:
Rare Patient Voice Email FormatsExamplePercentage
First.Last@rarepatientvoice.comJohn.Doe@rarepatientvoice.com
90%
Last@rarepatientvoice.comDoe@rarepatientvoice.com
5%
First@rarepatientvoice.comJohn@rarepatientvoice.com
2%
Fir.Last@rarepatientvoice.comJoh.Doe@rarepatientvoice.com
3%

Frequently Asked Questions

What is Rare Patient Voice's phone number?

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You can contact Rare Patient Voice's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Rare Patient Voice's official website and social media links?

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Rare Patient Voice's official website is rarepatientvoice.com and has social profiles on LinkedIn.

How much revenue does Rare Patient Voice generate?

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As of September 2026, Rare Patient Voice's annual revenue is estimated to be $10M - $25M.

What is Rare Patient Voice's SIC code and NAICS code?

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Rare Patient Voice's SIC code is 4899 - Communications Services, Not Elsewhere Classified and NAICS code is 5417 - Scientific Research and Development Services.

How many employees does Rare Patient Voice have currently?

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As of September 2026, Rare Patient Voice has approximately 65 employees across 2 continents, including North America and Europe. Key team members include Senior Vice President: P. C., Director Of Business Development: T. W. and Team Manager: L. Z. Explore Rare Patient Voice's employee directory with LeadIQ.

What industry does Rare Patient Voice belong to?

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Rare Patient Voice operates in the Research Services industry.

What technology does Rare Patient Voice use?

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Rare Patient Voice's tech stack includes UserWay, Google Ads, LinkedIn Ads, Hotjar, WordPress, CookieYes, Microsoft 365 and WP Engine.

What is Rare Patient Voice's email format?

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Rare Patient Voice's email format typically follows the pattern of First.Last@rarepatientvoice.com. Find more Rare Patient Voice email formats with LeadIQ.

When was Rare Patient Voice founded?

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Rare Patient Voice was founded in 2013.
Rare Patient Voice logo

Rare Patient Voice

Research ServicesMaryland, United States51-200 Employees

Rare Patient Voice is a research services firm that connects patients and family caregivers with a range of research opportunities. It recruits participants through in-person events and a broad referral network of patient advocacy and support groups to provide researchers with access to patient perspectives for study design and informed decision-making. Since 2013, participants have been compensated, with total payments exceeding $15 million.

Based in Towson, Maryland, the company operates as a mid-sized player in the research services industry, focused on facilitating patient input for studies. In February 2026, Rare Patient Voice LLC was acquired by Konovo Insights, signaling a recent strategic development for the business.

Section iconCompany Overview

Phone number
SIC Code
4899 - Communications Services, Not Elsewhere Classified
NAICS Code
5417 - Scientific Research and Development Services
Founded
2013
Employees
51-200

Section iconFunding & Financials

  • $10M - $25M

    Rare Patient Voice's revenue is estimated to be in the range of $10M - $25M

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