Insights

Funding hub The SMA Foundation is the leading funder of SMA research globally with substantial grant activity (over $100M spent on research and $30M on tools and assets). This positions them as a premier partner for pharma, biotech, and academic collaborations seeking funding-backed research and access to validated assets.

Shared results A core mandate is to ensure research results are freely available with minimal cost and obligation, enabling partners to leverage findings quickly. This openness can reduce barrier to collaboration and accelerate joint development programs.

Strategic partnerships Recent and ongoing collaborations with industry players (for example, PTC Therapeutics and Roche in past programs; Impulse Partners in 2026) indicate a strong track record of creating co-development opportunities and consulting roles, suggesting a credible path for new joint ventures.

Network broker The Foundation acts as a hub connecting pharma, biotech, academia, clinicians, government/regulators, and media. This network access can be offered as a consultancy or partnership platform to accelerate alliance formation and market entry strategies for potential partners.

Funding readiness With a global reach, notable media recognition, and a blend of nonprofit, VC, and biotech leadership, SMA Foundation can co-create grant-backed pilots, funding programs, or milestone-based partnerships that de-risk early-stage SMA programs for potential buyers or collaborators.

Similar companies to SMA Foundation

SMA Foundation Tech Stack

SMA Foundation uses 8 technology products and services including iCIMS, Amazon Web Services, WordPress, and more. Explore SMA Foundation's tech stack below.

SMA Foundation's Email Address Formats

SMA Foundation uses at least 4 email formats:
SMA Foundation Email FormatsExamplePercentage
FLast@smafoundation.orgJDoe@smafoundation.org
69%
First.Last@smafoundation.orgJohn.Doe@smafoundation.org
12%
Last@smafoundation.orgDoe@smafoundation.org
13%
F.Last@smafoundation.orgJ.Doe@smafoundation.org
6%

Frequently Asked Questions

What is SMA Foundation's phone number?

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You can contact SMA Foundation's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is SMA Foundation's official website and social media links?

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SMA Foundation's official website is smafoundation.org and has social profiles on LinkedIn.

How much revenue does SMA Foundation generate?

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As of September 2026, SMA Foundation's annual revenue is estimated to be $1M - $10M.

What is SMA Foundation's SIC code and NAICS code?

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SMA Foundation's SIC code is 6732 - Educational, Religious, and Charitable Trusts and NAICS code is 5417 - Scientific Research and Development Services.

How many employees does SMA Foundation have currently?

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As of September 2026, SMA Foundation has approximately 12 employees across 2 continents, including North America and Europe. Key team members include Managing Director: H. M., Managing Director: J. L. and Southwest Movers Association Foundation Board Of Directors Trustee: M. C. Explore SMA Foundation's employee directory with LeadIQ.

What industry does SMA Foundation belong to?

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SMA Foundation operates in the Research Services industry.

What technology does SMA Foundation use?

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SMA Foundation's tech stack includes iCIMS, Amazon Web Services, WordPress, Shopify, Google Workspace, Microsoft 365, Cisco and Piwik PRO Core.

What is SMA Foundation's email format?

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SMA Foundation's email format typically follows the pattern of FLast@smafoundation.org. Find more SMA Foundation email formats with LeadIQ.

When was SMA Foundation founded?

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SMA Foundation was founded in 2003.
SMA Foundation logo

SMA Foundation

Research ServicesNew York, United States11-50 Employees

The SMA Foundation is a research-focused nonprofit organization based in New York, established in 2003 by parents of a child with spinal muscular atrophy (SMA). Its work centers on accelerating the development of treatments for SMA, the leading genetic cause of death in infants and toddlers, by funding basic, translational, and clinical research and by developing research tools and drug-discovery assets. The foundation functions as a hybrid entity, combining nonprofit aims with elements of venture-like strategic thinking, and often serves as an advisor to government bodies, universities, industry, and other stakeholders involved in drug development. A key role is facilitating information exchange and collaboration across the SMA ecosystem, connecting pharmaceutical companies, biotech firms, academia, clinicians, patients, regulators, and the media, to advance progress in SMA research. The organization is widely recognized in national media outlets for its activities in supporting SMA research and collaboration, and it has engaged in partnerships that advance joint development programs with industry partners.

Section iconCompany Overview

Phone number
SIC Code
6732 - Educational, Religious, and Charitable Trusts
NAICS Code
5417 - Scientific Research and Development Services
Founded
2003
Employees
11-50

Section iconFunding & Financials

  • $1M - $10M

    SMA Foundation's revenue is estimated to be in the range of $1M - $10M

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