Insights

Fundraising Strength SMA Foundation is the leading funder of SMA research globally with over $100M invested across basic, translational, and clinical programs, indicating strong donor engagement opportunities and potential partnerships with philanthropy-aligned sponsors or corporate donors seeking impact.

Strategic Collaboration The organization acts as a hub for collaboration among pharma, biotech, academia, non-profits, clinicians, and regulators, creating multiple entry points for partnership programs, joint ventures, and information-sharing initiatives that could accelerate co-funded drug discovery and tool development.

Broadened Tools Investment of more than $30M in developing validated research tools and drug discovery assets suggests opportunities to license or co-develop platforms, assays, and datasets that could de-risk early-stage SMA programs for industry partners.

Market Positioning With high media visibility and a unique nonprofit-venture model, SMA Foundation holds strategic credibility to attract sponsors, grant programs, and CSR-focused collaborations, presenting a compelling case for corporate sponsorships and joint advocacy initiatives.

Scale Opportunities Revenue range near the lower end of mid-market, combined with a robust network and recent high-profile partnerships, signals potential for strategic alliances with larger biotech companies or contract research organizations seeking access to SMA expertise, tools, and collaboration networks.

Similar companies to SMA Foundation

SMA Foundation Tech Stack

SMA Foundation uses 8 technology products and services including Beaver Builder, Cloudflare, Shopify, and more. Explore SMA Foundation's tech stack below.

  • Beaver Builder
    Content Management System
  • Cloudflare
    Content Management System
  • Shopify
    E-commerce
  • Infinite Scroll
    Javascript Libraries
  • Lua
    Programming Languages
  • Bootstrap
    UI Frameworks
  • X-Content-Type-Options
    Web & Portal Technology
  • FitVids.js
    Web Tools And Plugins

SMA Foundation's Email Address Formats

SMA Foundation uses at least 1 format(s):
SMA Foundation Email FormatsExamplePercentage
FLast@smafoundation.orgJDoe@smafoundation.org
69%
First.Last@smafoundation.orgJohn.Doe@smafoundation.org
12%
Last@smafoundation.orgDoe@smafoundation.org
13%
F.Last@smafoundation.orgJ.Doe@smafoundation.org
6%

Frequently Asked Questions

Where is SMA Foundation's headquarters located?

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SMA Foundation's main headquarters is located at 888 Seventh Avenue Suite 400 New York, New York 10019 United States. The company has employees across 2 continents, including North AmericaEurope.

What is SMA Foundation's phone number?

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You can contact SMA Foundation's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is SMA Foundation's official website and social media links?

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SMA Foundation's official website is smafoundation.org and has social profiles on LinkedIn.

What is SMA Foundation's SIC code NAICS code?

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SMA Foundation's SIC code is 6732 - Educational, Religious, and Charitable Trusts NAICS code is 5417 - Scientific Research and Development Services.

How many employees does SMA Foundation have currently?

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As of June 2026, SMA Foundation has approximately 12 employees across 2 continents, including North AmericaEurope. Key team members include Chief Executive Officer: J. C.Executive Vice President: D. C.Senior Vice President: K. K.. Explore SMA Foundation's employee directory with LeadIQ.

What industry does SMA Foundation belong to?

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SMA Foundation operates in the Research Services industry.

What technology does SMA Foundation use?

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SMA Foundation's tech stack includes Beaver BuilderCloudflareShopifyInfinite ScrollLuaBootstrapX-Content-Type-OptionsFitVids.js.

What is SMA Foundation's email format?

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SMA Foundation's email format typically follows the pattern of FLast@smafoundation.org. Find more SMA Foundation email formats with LeadIQ.

When was SMA Foundation founded?

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SMA Foundation was founded in 2003.
SMA Foundation logo

SMA Foundation

Research ServicesNew York, United States11-50 Employees

The SMA Foundation is a research-focused nonprofit organization based in New York, established in 2003 by parents of a child with spinal muscular atrophy (SMA). Its work centers on accelerating the development of treatments for SMA, the leading genetic cause of death in infants and toddlers, by funding basic, translational, and clinical research and by developing research tools and drug-discovery assets. The foundation functions as a hybrid entity, combining nonprofit aims with elements of venture-like strategic thinking, and often serves as an advisor to government bodies, universities, industry, and other stakeholders involved in drug development. A key role is facilitating information exchange and collaboration across the SMA ecosystem, connecting pharmaceutical companies, biotech firms, academia, clinicians, patients, regulators, and the media, to advance progress in SMA research. The organization is widely recognized in national media outlets for its activities in supporting SMA research and collaboration, and it has engaged in partnerships that advance joint development programs with industry partners.

Section iconCompany Overview

Headquarters
888 Seventh Avenue Suite 400 New York, New York 10019 United States
Phone number
SIC Code
6732 - Educational, Religious, and Charitable Trusts
NAICS Code
5417 - Scientific Research and Development Services
Founded
2003
Employees
11-50

Section iconFunding & Financials

  • $1M$10M

    SMA Foundation's revenue is estimated to be in the range of $1M$10M

Section iconFunding & Financials

  • $1M$10M

    SMA Foundation's revenue is estimated to be in the range of $1M$10M

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