SRNA | connect. care. cure. ™ Email Format
Non-profit OrganizationsPennsylvania, United States11-50 Employees
SRNA, the Siegel Rare Neuroimmune Association, is a nonprofit international foundation focused on supporting individuals affected by rare neuroimmune disorders such as ADEM, AFM, MOGAD, NMOSD, optic neuritis and transverse myelitis. It serves people across ages—children, adolescents, and adults—and their families and healthcare providers, aiming to improve care through professional development, centers of excellence, and an international support network. The organization emphasizes strategic research priorities to better understand disease causes and to develop new therapies, while maintaining no membership fees for participants. Based in Philadelphia, SRNA operates with a global reach, counting members from more than 80 countries and maintaining a widespread network of support groups. Notable recent developments include collaborations and community-focused initiatives, such as partnership efforts and the creation of support platforms for members.