TANGO2 Research Foundation Email Format
Research ServicesConnecticut, United States2-10 Employees
The TANGO2 Research Foundation is a research-focused nonprofit based in Middletown, Connecticut, dedicated to advancing the understanding of TANGO2 deficiency disorder with the aim of finding a cure. Established in late 2017 by parents and caregivers, the organization supports funding, coordination, and guidance for researchers, scientists, and clinicians to accelerate basic and clinical knowledge about how TANGO2 mutations impact cellular, metabolic, and biochemical processes. Its activities are centered on building knowledge that can inform future therapies and improve outcomes for individuals with TANGO2 deficiency disorder, positioning the foundation within the broader rare disease and research services landscape. In recent years, the foundation has facilitated scientific collaboration through events such as the TANGO2 Innovation Summit and participation in rare disease symposia, signaling ongoing engagement with medical professionals and the patient community.