The Cute Syndrome Foundation Email Format

Hospitals and Health CareNew York, United States2-10 Employees

The Cute Syndrome Foundation is a small, Troy-based nonprofit in the hospitals and health care sector focused on SCN8A-related work. It aims to raise awareness of SCN8A mutations, help scientists studying the gene, and assist families around the world affected by the disorder.

It operates within the broader health care community, connecting scientists and families and, in the past, supporting research on the related gene PCDH19. In March 2026, Danielle Hayward was appointed Interim Executive Director, marking a recent leadership change.

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