Insights

Research and Data Collection The Ehlers-Danlos Society actively advances research through projects like the DICE Global Registry and the Hypermobile EDS Genetic Evaluation study, indicating an ongoing demand for data management, analytics solutions, and research collaboration tools.

Fundraising and Donations With recent funding of $400K and initiatives in legacy giving and planned donations, there are opportunities to offer advanced fundraising platforms, donor engagement tools, and donation processing solutions tailored for nonprofit organizations.

Community Engagement The society's awareness campaigns and community surveys, including COVID-19 experience studies, highlight a need for engagement software, survey tools, and online event platforms to enhance member communication and participation.

Technology Integration The use of various digital tools such as WordPress plugins and Facebook Pixel suggests an emphasis on website optimization and digital marketing, signaling opportunities for marketing automation, CRM integration, and website analytics services.

Potential Partnership Opportunities Their collaboration with LifeLegacy and focus on educational outreach presents avenues for partnership in content distribution, storytelling platforms, and educational resource development to expand their reach and impact.

Similar companies to The Ehlers-Danlos Society

The Ehlers-Danlos Society Tech Stack

The Ehlers-Danlos Society uses 8 technology products and services including Facebook Pixel, Unpkg, jQuery Migrate, and more. Explore The Ehlers-Danlos Society's tech stack below.

Facebook Pixel
Analytics
Unpkg
Content Delivery Network
jQuery Migrate
Javascript Libraries
OWL Carousel
Javascript Libraries
Lightbox
Javascript Libraries
WPBakery
Page Builders
NextGEN Gallery
Photo Galleries
The Events Calendar
Web Platform Extensions

Media & News

The Ehlers-Danlos Society's Email Address Formats

The Ehlers-Danlos Society uses at least 1 format(s):

The Ehlers-Danlos Society Email Formats	Example	Percentage
First.Last@ehlers-danlos.com	John.Doe@ehlers-danlos.com	48%
Last@ehlers-danlos.com	Doe@ehlers-danlos.com	3%
Last.First@ehlers-danlos.com	Doe.John@ehlers-danlos.com	1%
First.Last@ehlers-danlos.com	John.Doe@ehlers-danlos.com	48%

Frequently Asked Questions

Where is The Ehlers-Danlos Society's headquarters located?

The Ehlers-Danlos Society's main headquarters is located at 447 Broadway #670 2nd Floor New York, New York 10013 United States. The company has employees across 3 continents, including North AmericaEuropeOceania.

What is The Ehlers-Danlos Society's official website and social media links?

The Ehlers-Danlos Society's official website is ehlers-danlos.com and has social profiles on LinkedIn Crunchbase.

What is The Ehlers-Danlos Society's NAICS code?

The Ehlers-Danlos Society's NAICS code is 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations.

How many employees does The Ehlers-Danlos Society have currently?

As of February 2026, The Ehlers-Danlos Society has approximately 56 employees across 3 continents, including North AmericaEuropeOceania. Key team members include Chief Operations Officer: S. W.Chief Financial Officer: R. R.Non Executive Director: A. H. M.. Explore The Ehlers-Danlos Society's employee directory with LeadIQ.

What industry does The Ehlers-Danlos Society belong to?

The Ehlers-Danlos Society operates in the Non-profit Organizations industry.

What technology does The Ehlers-Danlos Society use?

The Ehlers-Danlos Society's tech stack includes Facebook PixelUnpkgjQuery MigrateOWL CarouselLightboxWPBakeryNextGEN GalleryThe Events Calendar.

What is The Ehlers-Danlos Society's email format?

The Ehlers-Danlos Society's email format typically follows the pattern of First.Last@ehlers-danlos.com. Find more The Ehlers-Danlos Society email formats with LeadIQ.

When was The Ehlers-Danlos Society founded?

The Ehlers-Danlos Society was founded in 1985.

The Ehlers-Danlos Society

Q: How many employees does The Ehlers-Danlos Society have currently?

The Ehlers-Danlos Society has approximately 56 employees.

Q: What technology does The Ehlers-Danlos Society use?

The Ehlers-Danlos Society's tech stack includes Facebook, Network for Good, AOS, Open Graph, WordPress.

Non-profit OrganizationsNew York, United States51-200 Employees

The Ehlers-Danlos Society is a global organization dedicated to advancing and accelerating research and education in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). We support the development of effective and equitable EDS and HSD therapies and work collaboratively to improve the lives of individuals affected by EDS and HSD.

Our Vision
To create a world in which each person living with the Ehlers-Danlos syndromes and hypermobility spectrum disorders has the right treatment and care at the right time for their specific needs.

Company Overview

Headquarters: 447 Broadway #670 2nd Floor New York, New York 10013 United States
Website: ehlers-danlos.com
NAICS Code: 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations
Founded: 1985
Employees: 51-200