The LAM Foundation Employee Directory

Non-profit OrganizationsOhio, United States11-50 Employees

The LAM Foundation, located in Cincinnati, Ohio, is a nonprofit organization dedicated to lymphangioleiomyomatosis (LAM), a rare lung disease that disproportionately affects women. Founded in 1995 as a grassroots effort, it has grown into a global leader in LAM advocacy and research support, acknowledged by the National Heart, Lung, and Blood Institute as a model for voluntary health agencies.

Its mission is to accelerate the development of new treatments and, ultimately, a cure by advancing research, supporting patient-centered care, and elevating the perspectives of women with rare diseases. The foundation funds education for patients and families, collaborates with clinicians and scientists, and supported research that contributed to milestones such as the 2015 FDA approval of Rapamune as the first effective treatment for LAM. Looking forward, it aims to promote earlier diagnosis and new therapies, improve access to comprehensive care, and build sustainable funding, with a recent partnership with the TSC Alliance to strengthen representation of the LAM community at meetings.

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