The Life Raft Group Email Format
Non-profit OrganizationsNew Jersey, United States11-50 Employees
The Life Raft Group is a small to mid-sized nonprofit based in Wayne, New Jersey, focused on improving outcomes for people affected by gastrointestinal stromal tumors (GIST). It combines patient support and education with a research program that centers on patient needs and is led by renowned GIST scientists and clinicians. The organization funds and coordinates research initiatives and provides services such as one-on-one counseling, local in-person meetings, and a biennial gathering that brings patients, the pharmaceutical community, and medical professionals together. Beyond direct support, LRG offers educational resources through videos, webinars, and specialized databases and newsletters to inform the GIST community while pursuing advocacy to improve treatment access and regional support. Recent developments include the September 2024 launch of the SDH-Deficient GIST Biobank and the October 2024 launch of the Liposarcoma Support Network, signaling an expansion of resources for rare cancers.