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Action Duchenne Employee Directory

FundraisingEngland, United Kingdom11-50 Employees

Action Duchenne is a small to mid-sized charity based in Bristol, England, focused on Duchenne muscular dystrophy (DMD), a rare genetic condition that causes progressive muscle weakness beginning in early childhood. It operates in fundraising and supports activities spanning research funding, family services, and science education programs related to DMD. Its work is aimed at people living with DMD and their families, along with researchers and educators who collaborate on the condition.

A notable recent development is the appointment of Marion Main, a physiotherapist and Duchenne expert, to Action Duchenne's webinar series in February 2024. In December 2023 the charity launched its All-through Support programme, described as the first of its kind for Duchenne muscular dystrophy.

Find Action Duchenne employees' phone numbers or email addresses

Action Duchenne Global Highlights

Location
Employees

Europe
29

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  • United Kingdom Of Great Britain And Northern Ireland
    29

North America
1

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  • United States Of America
    1

Action Duchenne's Leadership

  • Chief Executive Officer at Action Duchenne
    K. E.
    Chief Executive Officer
    Mobile Phone
  • Chief Executive Officer at Action Duchenne
    S. S.
    Chief Executive Officer
    Mobile Phone
  • Chief Scientific Officer at Action Duchenne
    M. A.
    Chief Scientific Officer
    Mobile Phone
  • Head Of Research at Action Duchenne
    R.
    Head Of Research
    Mobile Phone
  • Head Of New Business Development at Action Duchenne
    P. B.
    Head Of New Business Development
    Mobile Phone
  • Director at Action Duchenne
    A. M.
    Director
    Mobile Phone
  • Director at Action Duchenne
    G. F.
    Director
    Mobile Phone
  • Director at Action Duchenne
    M. S.
    Director
    Mobile Phone

Action Duchenne Employee Metrics

100%
50%
0%
2026
2025
  • Business
  • Branding
  • Arts & Design
  • Business Development
  • Program & Project Management
  • Other

Contact profiles from Action Duchenne

Name
Title
Contact
Location
Last Update
  • Director at Action Duchenne
    S. C.
    Director
    Mobile Phone
    UNITED KINGDOM, Greater London
    Oct 31, 2023
  • Senior Finance Professional at Action Duchenne
    R. C.
    Senior Finance Professional
    Mobile Phone
    UNITED KINGDOM, Greater London
    Jun 12, 2025
  • Research Committee Advisory at Action Duchenne
    T. F. F.
    Research Committee Advisory
    Mobile Phone
    United Kingdom, England
    Aug 28, 2026
  • Project Engagement & Support Coordinator at Action Duchenne
    R. M.
    Project Engagement & Support Coordinator
    Mobile Phone
    United Kingdom, England
    Sep 02, 2026
  • Finance Assistant at Action Duchenne
    R. K.
    Finance Assistant
    Mobile Phone
    United Kingdom, Greater London
    Feb 04, 2024
  • Civil Servant at Action Duchenne
    V. P.
    Civil Servant
    Mobile Phone
    UNITED KINGDOM, Greater London
    Oct 31, 2023
  • Regional Development Officer at Action Duchenne
    P. -. A. D.
    Regional Development Officer
    Mobile Phone
    United Kingdom, England
    Sep 10, 2026
  • Advocate & Dmd Registry Curator at Action Duchenne
    A. S.
    Advocate & Dmd Registry Curator
    Mobile Phone
    United Kingdom, England
    Apr 16, 2026
  • Takin' Charge Project Co-Ordinator at Action Duchenne
    C. B.
    Takin' Charge Project Co-Ordinator
    Mobile Phone
    United Kingdom, England
    Sep 06, 2026

Frequently Asked Questions

What is Action Duchenne known for?

Minus sign iconPlus sign iconAction Duchenne was founded in 2001 and operates in the Fundraising industry. Explore Action Duchenne's company overview page for more information.

What is Action Duchenne's most common email format?

Minus sign iconPlus sign iconAction Duchenne employees' email format typically follows the pattern of First@actionduchenne.org. Trying to find reliable and up-to-date employee contact data? Find more Action Duchenne email formats with LeadIQ.

How many employees does Action Duchenne have currently?

Minus sign iconPlus sign iconAction Duchenne has approximately 22 employees as of August 2026. These team members are located across 2 continents, including Europe and North America.

Who are Action Duchenne's key employees and leadership?

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As of August 2026, Action Duchenne's key employees include:

  • Chief Executive Officer: K. E.
  • Chief Executive Officer: S. S.
  • Chief Scientific Officer: M. A.
  • Head Of Research: R.
  • Head Of New Business Development: P. B.

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