Insights

Strategic Partnerships Potential collaboration opportunities with the foundation to access patient registries and natural history data, enabling partners to align research funding, sponsor studies, or develop educational programs for the Alport community.

Donor Engagement Leverage their donor recognition page and philanthropic network to propose sponsorships, targeted fundraising campaigns, or cause marketing partnerships that raise visibility for healthcare and biotech sponsors.

Research Alignment Identify opportunities to provide data services, biobanking, or analytics support for the foundation's research initiatives, leveraging their existing emphasis on patient data collection and natural history studies.

Educational Solutions Offer scalable education platforms, patient education materials, or webinar programs to support their mission while creating a channel for partner branding and thought leadership.

Event and Awareness Participate in or sponsor events like Alport Connect to maximize exposure among patients, families, clinicians, and researchers, generating leads for programmatic partnerships and grant opportunities.

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Alport Syndrome Foundation Tech Stack

Alport Syndrome Foundation uses 8 technology products and services including Amazon Web Services, WordPress, Shopify, and more. Explore Alport Syndrome Foundation's tech stack below.

Alport Syndrome Foundation's Email Address Formats

Alport Syndrome Foundation uses at least 1 email format:
Alport Syndrome Foundation Email FormatsExamplePercentage
FLast@alportsyndrome.orgJDoe@alportsyndrome.org
100%

Frequently Asked Questions

What is Alport Syndrome Foundation's phone number?

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You can contact Alport Syndrome Foundation's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Alport Syndrome Foundation's official website and social media links?

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Alport Syndrome Foundation's official website is alportsyndrome.org and has social profiles on LinkedIn.

How much revenue does Alport Syndrome Foundation generate?

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As of September 2026, Alport Syndrome Foundation's annual revenue is estimated to be $1M - $10M.

What is Alport Syndrome Foundation's SIC code and NAICS code?

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Alport Syndrome Foundation's SIC code is 8052 - Intermediate Care Facilities and NAICS code is 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations.

How many employees does Alport Syndrome Foundation have currently?

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As of September 2026, Alport Syndrome Foundation has approximately 15 employees across 1 continents, including North America. Key team members include Chairman: B. E. Explore Alport Syndrome Foundation's employee directory with LeadIQ.

What industry does Alport Syndrome Foundation belong to?

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Alport Syndrome Foundation operates in the Non-profit Organizations industry.

What technology does Alport Syndrome Foundation use?

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Alport Syndrome Foundation's tech stack includes Amazon Web Services, WordPress, Shopify, Google Workspace, Mailchimp, WP Engine, X-Content-Type-Options and DigitalOcean Web Hosting.

What is Alport Syndrome Foundation's email format?

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Alport Syndrome Foundation's email format typically follows the pattern of FLast@alportsyndrome.org. Find more Alport Syndrome Foundation email formats with LeadIQ.

When was Alport Syndrome Foundation founded?

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Alport Syndrome Foundation was founded in 2007.
Alport Syndrome Foundation logo

Alport Syndrome Foundation

Non-profit OrganizationsArizona, United States11-50 Employees

The Alport Syndrome Foundation is a United States-based nonprofit organization focused on the Alport syndrome community. The organization is based in Scottsdale, Arizona (PO Box 4130), and employs roughly 11 to 50 people. Its mission is to improve the lives of those affected by Alport syndrome through education, empowerment, advocacy, and direct investment in research. A substantial portion of its activities centers on research, including sponsoring a patient registry in the United States and collecting natural history data and biosamples. The foundation is described as the leading independent nonprofit in the United States serving and giving a voice to the Alport syndrome community, and information is available at alportsyndrome.org.

Section iconCompany Overview

Phone number
SIC Code
8052 - Intermediate Care Facilities
NAICS Code
813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations
Founded
2007
Employees
11-50

Section iconFunding & Financials

  • $1M - $10M

    Alport Syndrome Foundation's revenue is estimated to be in the range of $1M - $10M

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