Insights

Fundraising Optimization ASF already uses Classy and Kindful for donor management; there is runway to optimize donor acquisition, retention, and recurring giving through enhanced lifecycle analytics, personalized messaging, and integrated event and tribute programs.

Research Data Platform ASF operates a patient registry and biosample program and collaborates with NEPTUNE, creating a need for secure data management, analytics, and compliant data sharing with researchers—an integrated cloud-based platform plus governance and grant management support could add value.

Digital Presence With a modern tech stack and donor page initiatives, there is upside in website performance, security, content strategy, and video marketing to boost donations and awareness; opportunities to integrate analytics to map donor journeys.

Strategic Partnerships The NEPTUNE partnership and focus on rare diseases position ASF as a potential collaborator for research consortia and industry partners in trial recruitment and funding opportunities; a structured business development program could formalize outreach to pharma, CROs, and patient advocacy groups.

Nonprofit Services As a lean nonprofit with a clear mission, ASF may benefit from tailored, cost-effective services such as grant management, impact measurement, data privacy compliance, and donor stewardship programs—offering packaged solutions could open new avenues for sponsorships.

Similar companies to Alport Syndrome Foundation

Alport Syndrome Foundation Tech Stack

Alport Syndrome Foundation uses 8 technology products and services including Amazon Web Services, Cloudflare, Classy, and more. Explore Alport Syndrome Foundation's tech stack below.

  • Amazon Web Services
    Cloud Hosting
  • Cloudflare
    Content Management System
  • Classy
    Fundraising And Donation Management
  • Kindful
    Fundraising And Donation Management
  • Modernizr
    Javascript Libraries
  • PHP
    Programming Languages
  • YouTube
    Video Players
  • EventON
    Web Tools And Plugins

Alport Syndrome Foundation's Email Address Formats

Alport Syndrome Foundation uses at least 1 format(s):
Alport Syndrome Foundation Email FormatsExamplePercentage
FLast@alportsyndrome.orgJDoe@alportsyndrome.org
100%

Frequently Asked Questions

Where is Alport Syndrome Foundation's headquarters located?

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Alport Syndrome Foundation's main headquarters is located at po Box 4130 Scottsdale, Arizona 85261 United States. The company has employees across 1 continents, including North America.

What is Alport Syndrome Foundation's phone number?

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You can contact Alport Syndrome Foundation's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Alport Syndrome Foundation's official website and social media links?

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Alport Syndrome Foundation's official website is alportsyndrome.org and has social profiles on LinkedIn.

What is Alport Syndrome Foundation's NAICS code?

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Alport Syndrome Foundation's NAICS code is 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations.

How many employees does Alport Syndrome Foundation have currently?

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As of June 2026, Alport Syndrome Foundation has approximately 15 employees across 1 continents, including North America. Key team members include Co-Founder & Past President: S. L.Chairman: B. E.Vice President: V. D.. Explore Alport Syndrome Foundation's employee directory with LeadIQ.

What industry does Alport Syndrome Foundation belong to?

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Alport Syndrome Foundation operates in the Non-profit Organizations industry.

What technology does Alport Syndrome Foundation use?

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Alport Syndrome Foundation's tech stack includes Amazon Web ServicesCloudflareClassyKindfulModernizrPHPYouTubeEventON.

What is Alport Syndrome Foundation's email format?

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Alport Syndrome Foundation's email format typically follows the pattern of FLast@alportsyndrome.org. Find more Alport Syndrome Foundation email formats with LeadIQ.

When was Alport Syndrome Foundation founded?

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Alport Syndrome Foundation was founded in 2007.

Alport Syndrome Foundation

Non-profit OrganizationsArizona, United States11-50 Employees

The Alport Syndrome Foundation is a United States-based nonprofit organization focused on the Alport syndrome community. The organization is based in Scottsdale, Arizona (PO Box 4130), and employs roughly 11 to 50 people. Its mission is to improve the lives of those affected by Alport syndrome through education, empowerment, advocacy, and direct investment in research. A substantial portion of its activities centers on research, including sponsoring a patient registry in the United States and collecting natural history data and biosamples. The foundation is described as the leading independent nonprofit in the United States serving and giving a voice to the Alport syndrome community, and information is available at alportsyndrome.org.

Section iconCompany Overview

Headquarters
po Box 4130 Scottsdale, Arizona 85261 United States
Phone number
NAICS Code
813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations
Founded
2007
Employees
11-50

Section iconFunding & Financials

  • $1M$10M

    Alport Syndrome Foundation's revenue is estimated to be in the range of $1M$10M

Section iconFunding & Financials

  • $1M$10M

    Alport Syndrome Foundation's revenue is estimated to be in the range of $1M$10M

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