Alport Syndrome Foundation Employee Directory

Non-profit OrganizationsArizona, United States11-50 Employees

The Alport Syndrome Foundation is a United States-based nonprofit organization focused on the Alport syndrome community. The organization is based in Scottsdale, Arizona (PO Box 4130), and employs roughly 11 to 50 people. Its mission is to improve the lives of those affected by Alport syndrome through education, empowerment, advocacy, and direct investment in research. A substantial portion of its activities centers on research, including sponsoring a patient registry in the United States and collecting natural history data and biosamples. The foundation is described as the leading independent nonprofit in the United States serving and giving a voice to the Alport syndrome community, and information is available at alportsyndrome.org.

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