Insights

Niche Advocacy The association operates as an international support network for bladder exstrophy, presenting a focused B2C audience of patients, families, and healthcare providers. This creates opportunities for targeted outreach, patient education campaigns, and strategic partnerships with medical suppliers, educational platforms, and patient-centric services.

Strategic Partnerships Recent activity highlights involvement in global advocacy events and collaborations, including the Global Congress on Advocacy and Community Collaboration and the International Bladder Exstrophy Collaborative. This indicates receptiveness to joint programs, sponsorships, and co-branded initiatives that expand reach and credibility.

Provider Network The launch of an Adult Provider Directory signals a demand for knowledgeable urologists and lifelong care resources. This presents sales opportunities to healthcare professionals, telemedicine platforms, continuing education providers, and medical directory services seeking to reach adult congenital urology specialists.

Regional Outreach Initiatives such as the Uganda program demonstrate a willingness to expand international outreach through mission-style surgical and support work. This opens doors for medical equipment donations, training collaborations, and scalable funding partnerships in low-resource settings.

Community Education A-BE-C emphasizes education and psychosocial support for patients and families, suggesting demand for patient education materials, digital learning modules, community events, and tele-support tools that can be monetized through sponsorships, grants, or turnkey engagement packages.

Similar companies to Association for the Bladder Exstrophy Community

Association for the Bladder Exstrophy Community Tech Stack

Association for the Bladder Exstrophy Community uses 8 technology products and services including cdnjs, Twemoji, Google Fonts API, and more. Explore Association for the Bladder Exstrophy Community's tech stack below.

  • cdnjs
    Content Delivery Network
  • Twemoji
    Font Scripts
  • Google Fonts API
    Font Scripts
  • Qgiv
    Fundraising And Donation Management
  • Underscore.js
    Javascript Libraries
  • YouTube
    Video Players
  • jQuery Waypoints
    Web Tools And Plugins
  • Magnific Popup
    Web Tools And Plugins

Media & News

Association for the Bladder Exstrophy Community's Email Address Formats

Association for the Bladder Exstrophy Community uses at least 1 format(s):
Association for the Bladder Exstrophy Community Email FormatsExamplePercentage
First.Last@bladderexstrophy.comJohn.Doe@bladderexstrophy.com
100%

Frequently Asked Questions

What is Association for the Bladder Exstrophy Community's official website and social media links?

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Association for the Bladder Exstrophy Community's official website is bladderexstrophy.com and has social profiles on LinkedIn.

How much revenue does Association for the Bladder Exstrophy Community generate?

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As of July 2026, Association for the Bladder Exstrophy Community's annual revenue is estimated to be <$1M.

What is Association for the Bladder Exstrophy Community's SIC code NAICS code?

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Association for the Bladder Exstrophy Community's SIC code is 8099 - Health and Allied Services, Not Elsewhere Classified NAICS code is 62 - Health Care and Social Assistance.

How many employees does Association for the Bladder Exstrophy Community have currently?

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As of July 2026, Association for the Bladder Exstrophy Community has approximately 6 employees across 1 continents, including North America. Key team members include President & Executive Director: P. A.Board Member: J. G.. Explore Association for the Bladder Exstrophy Community's employee directory with LeadIQ.

What industry does Association for the Bladder Exstrophy Community belong to?

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Association for the Bladder Exstrophy Community operates in the Hospitals and Health Care industry.

What technology does Association for the Bladder Exstrophy Community use?

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Association for the Bladder Exstrophy Community's tech stack includes cdnjsTwemojiGoogle Fonts APIQgivUnderscore.jsYouTubejQuery WaypointsMagnific Popup.

What is Association for the Bladder Exstrophy Community's email format?

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Association for the Bladder Exstrophy Community's email format typically follows the pattern of First.Last@bladderexstrophy.com. Find more Association for the Bladder Exstrophy Community email formats with LeadIQ.
Association for the Bladder Exstrophy Community logo

Association for the Bladder Exstrophy Community

Hospitals and Health CareFlorida, United States2-10 Employees

The Association for the Bladder Exstrophy Community (A-BE-C) is a global nonprofit organization in the Hospitals and Health Care sector that provides education, support, and resources to individuals affected by bladder exstrophy and their families. Its network includes patients, parent groups, healthcare professionals, and others who share a commitment to addressing the medical and psychosocial aspects of the condition, aiming to help people realize their life potential. Based in Vero Beach, Florida, the organization operates on a small scale with a tight community focus, emphasizing international reach through initiatives such as patient and provider resources and collaborative workshops. Recent developments include the launch of an Adult Provider Directory to connect adults with congenital urologic needs to knowledgeable clinicians, reflecting continued expansion of its service offerings. The organization also highlights ongoing international activities, including annual workshops organized by the International Bladder Exstrophy Collaborative and regional initiatives like the Uganda program started in 2019, underscoring a broad, mission-driven approach to education and support across diverse regions.

Section iconCompany Overview

SIC Code
8099 - Health and Allied Services, Not Elsewhere Classified
NAICS Code
62 - Health Care and Social Assistance
Employees
2-10

Section iconFunding & Financials

  • <$1M

    Association for the Bladder Exstrophy Community's revenue is estimated to be in the range of <$1M

Section iconFunding & Financials

  • <$1M

    Association for the Bladder Exstrophy Community's revenue is estimated to be in the range of <$1M

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