Association for the Bladder Exstrophy Community Employee Directory

Hospitals and Health CareFlorida, United States2-10 Employees

The Association for the Bladder Exstrophy Community (A-BE-C) is a global nonprofit organization in the Hospitals and Health Care sector that provides education, support, and resources to individuals affected by bladder exstrophy and their families. Its network includes patients, parent groups, healthcare professionals, and others who share a commitment to addressing the medical and psychosocial aspects of the condition, aiming to help people realize their life potential. Based in Vero Beach, Florida, the organization operates on a small scale with a tight community focus, emphasizing international reach through initiatives such as patient and provider resources and collaborative workshops. Recent developments include the launch of an Adult Provider Directory to connect adults with congenital urologic needs to knowledgeable clinicians, reflecting continued expansion of its service offerings. The organization also highlights ongoing international activities, including annual workshops organized by the International Bladder Exstrophy Collaborative and regional initiatives like the Uganda program started in 2019, underscoring a broad, mission-driven approach to education and support across diverse regions.

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