CJD Foundation, Inc.

Non-profit OrganizationsUnited States2-10 Employees

The Creutzfeldt-Jakob Disease Foundation consists of members who are concerned about the complexity of issues surrounding this fatal brain disease. Our mission is to support families and loved ones touched by CJD.  We carry out this mission by means of:

     Publication of CJD Information pamphlet
     Political and public policy advocacy 
     An Annual Family Conference
     Family Workshops held around the country
     Collaboration with the National Prion Disease Pathology Surveillance Center and the 
                Centers for Disease Control and Prevention 
     Monitoring and communicating by newsletter all of the current research and Foundation activities
     Collaboration with international support groups from 10 other countries

PHILOSPHY
The Foundation's philosophy is to be proactive by establishing collaborations and linkages, communicating with family members, researchers, physicians and political representatives and informing the broader community about CJD.
 
POLICY
Our policy is to offer support, information and practical advice. We do not offer opinions or medical advice.
 
PRIVACY POLICY
All information shared with the CJD Foundation is confidential and not used or shared without your written consent. For more detailed information please view our privacy policy.

Sign up for free to view info

Email Format Employee directory