CJD Foundation, Inc. Email Format
Non-profit OrganizationsOhio, United States11-50 Employees
The CJD Foundation, Inc. is a nonprofit organization focused on addressing the needs associated with Creutzfeldt-Jakob disease. Based in Fairlawn, Ohio, the foundation supports families and loved ones affected by CJD through information distribution, public policy advocacy, and educational activities such as an annual family conference and regional workshops. It engages in collaborative efforts with the National Prion Disease Pathology Surveillance Center and the Centers for Disease Control and Prevention, while maintaining communications about ongoing research and foundation activities. The organization also partners with international support groups and participates in a shared online research registry to facilitate prion disease research, reflecting its role within the broader community and public health landscape.