Cleft Lip and Palate Action (CLAPA)

Non-profit OrganizationsEngland, United Kingdom11-50 Employees

Cleft Lip and Palate Action (CLAPA) is the national charity supporting, connecting, celebrating and championing people born with a cleft and their families in the UK.

We bring together people affected by cleft to help them connect with others who share their experiences, welcoming them into a supportive community for life.

Our services include:
*Vibrant social Facebook, Twitter and Instagram profiles which promote positivity, bust myths and celebrate differences with regular content created by and for the cleft community.
*Online support groups moderated by trained volunteers provide an instant connection for those looking for an informal support network.
*Regular events give people the chance to talk about their experiences and worries and hear from others at all stages of the cleft journey.
*Confidential one-to-one support provided by trained volunteer patients and parents who reassure those most in need that they can cope with whatever lies ahead.
*Accredited information on cleft led by our community, reflecting their experiences and emotional needs as well as medical facts.
*An Advocacy Service that provides tailored information and signposting to those with complex enquiries.
*A Children and Young People’s Council made up of 9-17-year-olds who meet to share their thoughts and experiences, helping to improve our support services as well as cleft research and NHS care.
*A consultancy service for researchers which connects their work with our community.
*A feeding service that supplies 15,000 subsidised items of specialist equipment for babies born with a cleft each year, including free of charge items for new and vulnerable families.

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