Insights

Specialized Focus NFED's exclusive dedication to ectodermal dysplasias presents a niche opportunity for healthcare, biotech, and medical device companies aiming to develop or market treatments, diagnostic tools, or supportive technologies tailored to rare genetic conditions.

Growing Leadership Recent leadership transitions and strategic hires indicate organizational growth and a focus on expanding treatment programs and advocacy efforts, creating opportunities for partners interested in supporting or collaborating on community engagement and awareness initiatives.

Research & Innovation NFED's active involvement in groundbreaking research and conferences signifies openness to collaborations in innovative therapies, clinical research, and educational platforms, ideal for R&D companies seeking to access rare disease communities.

Community Engagement The launch of programs like Smile Bridge and participation in large conferences demonstrate NFED's commitment to direct service delivery and community outreach, presenting prospects for medical service providers, dental care organizations, and patient support services.

Funding & Expansion With a revenue range of up to 10 million dollars and recent program expansions, there are opportunities for corporate sponsorships, grants, and partnership funding, especially with organizations looking to enhance visibility within the rare disease advocacy space.

National Foundation for Ectodermal Dysplasias Tech Stack

National Foundation for Ectodermal Dysplasias uses 8 technology products and services including Social Snowball, Facebook Pixel, Gravatar, and more. Explore National Foundation for Ectodermal Dysplasias's tech stack below.

  • Social Snowball
    Affiliate Advertising Networks
  • Facebook Pixel
    Analytics
  • Gravatar
    Audio, Video, Graphics
  • WordPress
    Content Management System
  • Hoefler&Co
    Font Scripts
  • jQuery Migrate
    Javascript Libraries
  • Priority Hints
    Performance
  • Yoast SEO
    Search Engines

Media & News

National Foundation for Ectodermal Dysplasias's Email Address Formats

National Foundation for Ectodermal Dysplasias uses at least 1 format(s):
National Foundation for Ectodermal Dysplasias Email FormatsExamplePercentage
First@nfed.orgJohn@nfed.org
100%

Frequently Asked Questions

Where is National Foundation for Ectodermal Dysplasias's headquarters located?

Minus sign iconPlus sign icon
National Foundation for Ectodermal Dysplasias's main headquarters is located at 6 Executive Drive Suite 2 Fairview Heights, Illinois 62208 United States. The company has employees across 1 continents, including North America.

What is National Foundation for Ectodermal Dysplasias's phone number?

Minus sign iconPlus sign icon
You can contact National Foundation for Ectodermal Dysplasias's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is National Foundation for Ectodermal Dysplasias's official website and social media links?

Minus sign iconPlus sign icon
National Foundation for Ectodermal Dysplasias's official website is nfed.org and has social profiles on LinkedIn.

What is National Foundation for Ectodermal Dysplasias's NAICS code?

Minus sign iconPlus sign icon
National Foundation for Ectodermal Dysplasias's NAICS code is 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations.

How many employees does National Foundation for Ectodermal Dysplasias have currently?

Minus sign iconPlus sign icon
As of April 2026, National Foundation for Ectodermal Dysplasias has approximately 18 employees across 1 continents, including North America. Key team members include Chief Executive Officer: M. F.Executive Director: G. K.Director, Marketing & Communications: V. M.. Explore National Foundation for Ectodermal Dysplasias's employee directory with LeadIQ.

What industry does National Foundation for Ectodermal Dysplasias belong to?

Minus sign iconPlus sign icon
National Foundation for Ectodermal Dysplasias operates in the Non-profit Organizations industry.

What technology does National Foundation for Ectodermal Dysplasias use?

Minus sign iconPlus sign icon
National Foundation for Ectodermal Dysplasias's tech stack includes Social SnowballFacebook PixelGravatarWordPressHoefler&CojQuery MigratePriority HintsYoast SEO.

What is National Foundation for Ectodermal Dysplasias's email format?

Minus sign iconPlus sign icon
National Foundation for Ectodermal Dysplasias's email format typically follows the pattern of First@nfed.org. Find more National Foundation for Ectodermal Dysplasias email formats with LeadIQ.

When was National Foundation for Ectodermal Dysplasias founded?

Minus sign iconPlus sign icon
National Foundation for Ectodermal Dysplasias was founded in 1981.

National Foundation for Ectodermal Dysplasias

Non-profit OrganizationsIllinois, United States11-50 Employees

Together, we enrich the lives of people affected by ectodermal dysplasias by fostering community, providing education and support, and driving advocacy and groundbreaking research—creating a brighter future for all.

The National Foundation for Ectodermal Dysplasias (NFED) is the worldwide expert on ectodermal dysplasias and the only advocacy organization in the United States dedicated to those living with these disorders.

Our Vision
The National Foundation for Ectodermal Dysplasias will be known as a recognized leader among health-related nonprofit organizations;
for providing comprehensive services with loving care to individuals affected by ectodermal dysplasias and their families; for helping individuals and families benefit from early diagnosis and care; and
for spearheading research that ultimately develops cures.

Our Values
-Culture that places people first.
-Compassion in understanding and assisting the needs of affected individuals and families.
-Comprehensive resources to connect individuals and families, health professionals, researchers, and others.
-Catalyst for progress in research and responsive to the research needs of its individuals and families.
-Impact in achieving results for individuals and families, health professionals, and communities.
-Integrity in relations with trustworthy and ethical practices.

Section iconCompany Overview

Headquarters
6 Executive Drive Suite 2 Fairview Heights, Illinois 62208 United States
Phone number
Website
nfed.org
NAICS Code
813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations
Founded
1981
Employees
11-50

Section iconFunding & Financials

  • $1M$10M

    National Foundation for Ectodermal Dysplasias's revenue is estimated to be in the range of $1M$10M

Section iconFunding & Financials

  • $1M$10M

    National Foundation for Ectodermal Dysplasias's revenue is estimated to be in the range of $1M$10M

Ready to create more pipeline?

Get a demo and discover why thousands of SDR and Sales teams trust
LeadIQ to help them build pipeline confidently.

© LeadIQ, Inc. All rights reserved.