Insights

Funding momentum NFED has recently secured substantial funding and ongoing fundraising success, including a financing of 4.8 million dollars, indicating strong donor engagement and potential for sponsorship partnerships, grant collaborations, or cause-marketing initiatives.

Expanded programs Leadership changes and new program launches such as Smile Bridge and enhanced treatment/research initiatives suggest opportunities to offer program support services, technology platforms for fundraising and patient care coordination, and strategic consulting to scale impact.

Advocacy footprint Growth in advocacy capacity with state leads and collaborations on IAMRARE and NORD platforms indicates demand for stakeholder engagement tools, policy advocacy services, and education/outreach solutions to amplify impact.

Digital backbone A layered tech stack including Salesforce Marketing Cloud, WordPress, Shopify, and Google Cloud presents a ready-made foundation for implementing CRM-driven fundraising campaigns, digital engagement, and e-commerce-based donor programs.

Strategic leadership Recent executive leadership changes signal openness to strategic partnerships, advisory services, and customized sustainability or impact measurement consulting to align with growth and long-term mission objectives.

Similar companies to National Foundation for Ectodermal Dysplasias

National Foundation for Ectodermal Dysplasias Tech Stack

National Foundation for Ectodermal Dysplasias uses 8 technology products and services including Linkedin Insight Tag, WordPress, Shopify, and more. Explore National Foundation for Ectodermal Dysplasias's tech stack below.

Media & News

National Foundation for Ectodermal Dysplasias's Email Address Formats

National Foundation for Ectodermal Dysplasias uses at least 1 email format:
National Foundation for Ectodermal Dysplasias Email FormatsExamplePercentage
First@nfed.orgJohn@nfed.org
100%

Frequently Asked Questions

What is National Foundation for Ectodermal Dysplasias's phone number?

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You can contact National Foundation for Ectodermal Dysplasias's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is National Foundation for Ectodermal Dysplasias's official website and social media links?

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National Foundation for Ectodermal Dysplasias's official website is nfed.org and has social profiles on LinkedIn.

How much revenue does National Foundation for Ectodermal Dysplasias generate?

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As of August 2026, National Foundation for Ectodermal Dysplasias's annual revenue is estimated to be $1M - $10M.

What is National Foundation for Ectodermal Dysplasias's NAICS code?

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National Foundation for Ectodermal Dysplasias's NAICS code is 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations.

How many employees does National Foundation for Ectodermal Dysplasias have currently?

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As of August 2026, National Foundation for Ectodermal Dysplasias has approximately 21 employees across 1 continents, including North America. Key team members include Director, Marketing & Communications: V. M. Explore National Foundation for Ectodermal Dysplasias's employee directory with LeadIQ.

What industry does National Foundation for Ectodermal Dysplasias belong to?

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National Foundation for Ectodermal Dysplasias operates in the Non-profit Organizations industry.

What technology does National Foundation for Ectodermal Dysplasias use?

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National Foundation for Ectodermal Dysplasias's tech stack includes Linkedin Insight Tag, WordPress, Shopify, Google Workspace, Mailchimp, Google Cloud, Salesforce Marketing Cloud Account Engagement and WP Engine.

What is National Foundation for Ectodermal Dysplasias's email format?

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National Foundation for Ectodermal Dysplasias's email format typically follows the pattern of First@nfed.org. Find more National Foundation for Ectodermal Dysplasias email formats with LeadIQ.

When was National Foundation for Ectodermal Dysplasias founded?

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National Foundation for Ectodermal Dysplasias was founded in 1981.
National Foundation for Ectodermal Dysplasias logo

National Foundation for Ectodermal Dysplasias

Non-profit OrganizationsIllinois, United States11-50 Employees

The National Foundation for Ectodermal Dysplasias (NFED) is a non-profit organization based in Fairview Heights, Illinois, dedicated to supporting individuals affected by ectodermal dysplasias through education, community-building, advocacy, and research. As the worldwide expert on these conditions, NFED serves as a leading resource for families, health professionals, researchers, and others seeking comprehensive information and connections related to ectodermal dysplasias. The organization emphasizes early diagnosis and care, aiming to improve outcomes and drive progress toward cures by fostering collaborative resources and research initiatives.

Section iconCompany Overview

Phone number
Website
nfed.org
NAICS Code
813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations
Founded
1981
Employees
11-50

Section iconFunding & Financials

  • $1M - $10M

    National Foundation for Ectodermal Dysplasias's revenue is estimated to be in the range of $1M - $10M

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